"We have three top priorities: advocacy, advocacy, advocacy."

Ed Roberts


New Rule Enacted by Bush Administration Impedes Cases Against Nursing Homes

By Cindy Skrzycki
Tuesday, February 24, 2009; D02

The Bush administration shut off a source of information last fall about abuse and neglect in long-term care facilities that people suing nursing homes consider crucial to their cases.

The change, which affects the $144 billion nursing-home industry, was enacted with no public notice or attention.

"This is pretty stunning," said Mark Kosieradzki, a plaintiff attorney in Plymouth, Minn. "Nobody was told. It was just done."

The rule designates state inspectors and Medicare and Medicaid contractors as federal employees, a group usually shielded from providing evidence for either side in private litigation.

The restrictions affect about 16,000 nursing facilities and 3 million residents in the United States. The practical effect is to force litigants to go to greater lengths, including seeking court orders, to get inspection reports or depositions for cases they are pursuing or defending.

"This change hurts nursing-home residents and their families by allowing bad practices to be kept in secret by nursing homes and inspectors," said Eric M. Carlson, an attorney with the National Senior Citizens Law Center in Los Angeles. "Government inspectors have the right to go into nursing homes and investigate, and they learn things that residents and families otherwise could never find out."

The new rule, which was issued in September, generally prohibits state health departments and contractors from participating in private lawsuits involving facilities that are in the federal assistance program without approval by the head of the Department of Health and Human Services.

The rule was justified as being necessary to accommodate the hiring of new contractors to make Medicare payments to providers, perform audit and fraud reviews, and do survey, certification and enforcement work for the program.

Requests for these employees to participate in private cases "divert employees from their federal survey, certification and enforcement responsibilities," the Bush administration said in a supporting document. "The cumulative effect of these requests can impede these activities."

The effect of the directives has started to play out in the nation's courtrooms. Requests for information, once fairly routine, now are stalled between state and federal officials.

Anne Marie Regan, an attorney with the Kentucky Equal Justice Center, a nonprofit poverty legal advocacy and research center, said the change has slowed a case she is pursuing on behalf of an 85-year-old man who was evicted from a nursing home in 2007.

Priscilla Shoemaker, legal counsel for the American Health Care Association in Washington, said nursing homes "are in the same boat" because they also have difficulty getting information on how state inspectors determine penalties, citations and orders to shut down homes.

From the Washington Post.

Social Security Caregiver Credit Act Reintroduced

On January 28, 2009, Representative Nita Lowey (D-NY) reintroduced the Social Security Caregiver Credit Act (H.R. 769).  The bill would allow unpaid family caregivers to claim Social Security benefits as if they had worked for a wage (according to a specified formula) during each month they were engaged for at least 80 hours in providing care to a dependent relative, for up to five years of such service.  The bill was introduced but not voted upon in the 110th Congress. 

For more information, visit: Thomas

THE ARC OF ANCHORAGE CONDEMNS NEGATIVE DEPICTION OF PEOPLE WITH INTELLECTUAL DISABILITIES IN FILM “TROPIC THUNDER”

[Anchorage, AK] – The Arc of Anchorage announced a campaign to address the portrayal of an individual with an intellectual disability in the movie “Tropic Thunder” which opened nationwide this week. The Arc of Anchorage joins the efforts of The Arc of the United States and other national advocacy groups mobilizing around the use of hate-speech in referring to persons with intellectual disabilities. “Tropic Thunder” features Ben Stiller portraying “Simple Jack,” a person with an intellectual disability; this character is repeatedly referred to as a “retard,” “moron,” and “imbecile.”

The Arc of Anchorage is marshalling people with intellectual disabilities, their families, self-advocates, members and other stakeholders to establish a presence around the movie theaters where the film is being shown. “We are urging the general public not to spend their hard-earned money on this film because of its deplorable and demeaning view of a person with intellectual disabilities,” said Gwen Lee, Executive Director of The Arc. “This is an opportunity to educate our neighbors about the rights of people with disabilities – most importantly to live with the same dignity afforded every ordinary American,” added Gwen Lee.

Fay Peace, a self-advocate, said, “As a person with an intellectual disability, I have been called the R-word in my life. I live and work in the community and treat everyone I meet with respect. I deserve that same respect. Movies that disrespect me and my rights should not be supported. ‘Tropic Thunder’ is supposed to be a comedy, but there is nothing funny about putting down people with disabilities.”

A Rally for Respect will happen on Saturday, August 16 at 1 pm at the Anchorage theaters currently screening the movie (Century 16 and Totem Theater). Organizers and advocates will be distributing flyers on the R-word and hate speech, along with other educational materials.

Get the press kit here.

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Disability rights protestors force meeting with Bush Administration

Jim Kreatschman, Access Alaska Interior Director (second from right with the legs) outside the RSA

PRESS RELEASE

For more information:

Kelly Buckland (208) 869-4135
Shannon Jones (913) 486-4565
Brad Williams (518) 424-8121

Disability rights protestors force meeting with Bush Administration

WASHINGTON, DC (July 23, 2008)
Over 200 disability rights advocates from across the country protested outside the U.S. Rehabilitation Services Administration (RSA) located at Potomac Center Plaza.

The boisterous group chanted until the Assistant Secretary of OSERS, Tracy Justesen, came down and agreed to meet with a delegation from the National Council on Independent Living (NCIL). The NCIL delegation presented the memberships demands to the Assistant Secretary.

Specifically at issue is RSA’s recent interpretation of the Rehabilitation Act and the negative impact it will have on the operation of Statewide Independent Living Councils (SILC’s). Despite years of accepted operation, RSA has limited the scope of councils so that they function according to minimum statutory duties.

“In Kansas, by advocating for public policy issues, we have increased the employment rate for people with disabilities by 20%,” stated Shannon Jones of Topeka, Kansas. “These types of advocacy efforts are being thwarted by RSA’s narrow interpretation of SILC duties. Once again, people with disabilities will be marginalized because of bureaucratic nonsense.”

After meeting for more than an hour, RSA agreed to respond in writing to NCIL’s demands. While NCIL looks forward to their response, they are concerned about how these restrictions will continue to impede policy related to people with disabilities.

Radio Host Michael Savage Calls Children with Autism: "Just Brats"

From The New York Times (July 22):

Savage Stands by Autism Remarks By JACQUES STEINBERG

Michael_savage Michael Savage, the incendiary radio host who last week characterized nearly every child with autism as “a brat who hasn’t been told to cut the act out,” said in a telephone interview on Monday that he stood by his remarks and had no intention of apologizing to those advocates and parents who have called for his firing over the matter...

...

...On the July 16 installment of his program, which is broadcast every weekday, Mr. Savage suggested that “99 percent of the cases” of autism were a result of lax parenting...

...Read the entire article (free registration may be required).

...Read a related article.

---------------

TAKE ACTION!

Not only did Michael Savage claim that children with autism are a fraud, he used offensive language, referring to them as "idiots," "morons," and "brats."

Let's send a message to Michael Savage, his talkshow, and all his syndicators and commercial supporters. Tell them that people with disabilities, including children with autism, make up 1 in 5 Americans, and that his comments are inaccurate, offensive, and tantamount to hate speech. Encourage sponsors to pull their advertising dollars. Tell broadcasters that this sort of hate-filled rant is unacceptable.

Michael Savage michaelsavage@paulreveresociety.com

Talk Radio Network P.O. Box 3755 Central Point, Oregon 97502 Phone: 541-664-8827 Fax: 541-664-6250

The Savage Nation The Paul Revere Society 150 Shoreline Hwy, Bldg E Mill Valley, CA 94941 Fax: 415-339-9383

Buckley Broadcasting/WOR Radio General Phone Number: 212 642 4500 111 Broadway 3rd Floor, New York, NY 10006

Home Depot public_relations@homedepot.com (770) 384-4646

Sears Sears Public Relations And Communications (847) 286-8371 contact through their website: http://www.searsmedia.com/tools/inquires/feedback.htm

Radioshack Media Relations_ Riverfront Campus _Mail Stop #CF7-130_300 RadioShack Circle _Fort Worth, TX 76102-1964_ Phone: (817) 415-3300_ Fax: (817) 415-2585_ E-mail: media.relations@RadioShack.com

AFLAC 1-800-99-AFLAC (1-800-992-3522) Laura Kane, 2nd Vice President External Relations Aflac Incorporated_1-706-596-3493 Mechell Clark_ Media Relations Manager_ 1-706-243-8004 news@aflac.com

Budweiser Anheuser-Busch, Inc. One Busch Place St. Louis, MO 63118 Email through their site: http://contactus.anheuser-busch.com/contactus/email.asp 1 800 DIAL BUD (1 800 342 5283)0

From Justice for All Blog

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Martin's World

Advocating for Martin's rights, and beyond Martin for the rights of all the disabled, has become not merely Donna's passion but the organizing principle of her life. This mother of four -- Martin has three younger brothers -- somehow managed to go to law school, graduating last January. In the process, she did an externship in school disability law.

"My basic philosophy is not to take no for an answer," she said of her ongoing struggle to secure scraps of funding on Martin's behalf. "Taking no allows the system to go on. If I get a yes, they've broken the rule, and we've made a breakthrough. The system starts to change."

She adds, "This is a civil rights movement."

And her home state just happens to be one of the worst in the country in terms of providing funding for at-home care, which is why members of the outspoken disability-rights organization ADAPT converged on Chicago this week for five days of "protest against Illinois systems that starve people with disabilities . . . of their rights and their independence." Donna was with them, of course.

Read more about Martin here.

"Oh man have I taken some heat over this," Rep. Coghill

To elderly, health stipend no gray issue $120 A MONTH: Seniors blast Coghill for killing attempt to extend program.

By JULIA O'MALLEY, jomalley@adn.com

Published: June 15, 2007

Lynn Cragholm lived 73 years without walking the street in protest, but her lack of experience didn't show Thursday at the corner of Fireweed Lane and A Street.

Facing traffic, her hair swept into a graceful, gray top-knot, she waved a sign that read: "Work Hard, Pay Taxes, Raise a Family, Get Shafted by Rep. Coghill."

Cragholm joined about 60 seniors who demonstrated on all four corners of the intersection in support of SeniorCare, a program that provides $120 a month to low-income people over 65. SeniorCare is set to end June 30, but supporters hope to pressure the Legislature to extend it in a special session that begins here on June 26.

You can read the full story online at:

http://www.adn.com/news/alaska/anchorage/story/8978567p-8893993c.html

Rally in support of SeniorCare scheduled for June 14 in Anchorage

Seniors and advocates for low-income seniors are scheduled to carry signs and join in a public rally in support of Alaska’s “SeniorCare” program Thursday, June 14 at 11:30 a.m. at Access Alaska 121 W. Fireweed Lane, Anchorage.

SeniorCare provides $120 a month to low-income seniors (singles over 65 with annual incomes of less than $16,133 and couples with annual incomes of less than $21,641). Most recipients use the benefit for utilities, food, rent, or medications. Recipients of the assistance program as well as senior advocates are expected to make comments. Legislators have also been invited to attend.

WHAT: Public rally in support of the SeniorCare program
WHERE: Access Alaska Offices, on the corner of “A” and W. Fireweed
WHEN: Thursday, June 14, 2007 from 11:30 am – 1:00 pm
WHO: Seniors and senior advocates

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Sad News

Access Alaska lost a great friend on Sunday I'm really going to miss his gentle anger, wisdom and bad jokes, the disability community is going to miss one of its strongest advocates and Alaska has lost another of its shining lights.

From the Anchorage Daily news:

Anchorage resident John Stripe, 86, died May 13, 2007, at Third Medical Group Hospital, Elmendorf AFB. He resided in Anchorage for the past 36 years.

A memorial Mass will be at 11 a.m. Friday at St. Patrick's Catholic Church. A reception will be afterward in the parish hall. A graveside service with military honors will be at 2 p.m. at Fort Richardson National Cemetery. John was born Feb. 3, 1921, to Jerrold and Lena Stripe in Cedar Rapids, Iowa, where he was raised. As a young man, John joined the Army and at this time met and married his wife "Barbara Honey" as he called her. He was a veteran of World War II

At the age of 29, soon after discharge from the Army, John was stricken with polio. He courageously fought this disease, was hospitalized for a year and was left paralyzed from the waist down. Being determined to finish college and to have the best chance to recuperate, he and his family moved to Portales, N.M., where he finished college and went on to become a teacher.

In 1965, he and his family moved to Portland, Ore., and John worked as a social worker for the welfare department. After his daughter married and moved to Anchorage, he and his wife made the decision to follow to further enjoy their grandchildren.

His family wrote: "John had the ability to overcome the limitations of his disabilities with a desire to be able to live independently and became a huge advocate for others with disabilities. He served on the boards of many organizations such as Assets and most recently, Access Alaska. He traveled to Juneau annually to participate in the Key Campaign and was able to help make Anchorage a safer, more easily accessible place for all the handicapped and disabled. After the death of his wife of 53 years, John became the proud owner of an electric mobility scooter and with its use, shed his crutches, gaining many newfound freedoms in life. He could be seen all over Anchorage shopping, sightseeing, attending community events, and visiting all of his friends, especially in the downtown area.

"John's exuberance for life gave him have a special glow that you could see and feel in his presence. His keen intellect and sharp mind made him a very interesting person to know. This never diminished slightly even in his golden years. His greatest joys and pleasures were derived when he spent time with his children and grandchildren. Having formed unique and special bonds with each, he was able to provide valuable advice, guidance, mentoring and the deepest of affection for each of them. To ease the sorrows of our huge loss, we have been able to find solace in the thoughts of him being united with our Lord and reunited with his bride." He is survived by his daughter and son-in-law, Kathy and Jack Appolloni; grandchildren, Angie Huff, Michael, Monica and Megan; great-grandchildren, Tiffany, Brittney and Mikey; and great-great-grandson, A.J., all of Anchorage.

John was preceded in death by his wife, Barbara; and son, Jerrold. Memorial donations may be given to Salvation Army Meals on Wheels. Arrangements are with Anchorage Funeral Home and Crematory.

Published in the Anchorage Daily News on 5/16/2007.