ADAPT Press Release

For Immediate Release:
April 27, 2009
For Information Contact:
Bruce Darling 585-370-6690
Marsha Katz 406-544-9504
http://www.adapt.org

91 Arrested When ADAPT Told Obama Administration Won't Support Inclusion of Long Term Services in Health Care Reform

Washington, D.C.--- Ten members of ADAPTB met with Obama Administration officials in the White House today, and came away disappointed at the lack of commitment from the administration on inclusion of long term services and supports in health care reform. The administration stated that its only commitment currently is to extend insurance to the people who are uninsured, and that the people in nursing homes and institutions would need to continue to wait until an unspecified time in the future when it is proven that the health care reform worked. Angered by that response, 500 ADAPT members immediately stretched out along the White House fence, using handcuffs and chains to secure themselves. The Capitol Police ultimately arrested 91 people.

"This is unequivocally a civil rights issue, and we thought we had a civil rights president," said Bruce Darling, ADAPT Organizer from Rochester, New York. "He took the oath of office on the Lincoln bible, and has spoken repeatedly about inclusion and integration. But after today, it seems clear that inclusion doesn't apply to us or to the thousands of people trapped for years behind institution and nursing home walls and those of us who are aging with nursing homes looming in our futures. Instead of the promised 'change' we are just getting more of the same old thing."

Obama officials in the one hour meeting with ADAPT included Nancy-Ann De Parle, Counselor to the President and Director of the White House Office of Health Reform, aka the President's Health Care Czar; Jeff Crowley, Director of Office of National AIDS Policy and an advisor on the administration's development of disability policies; Henry Claypool, Director of the Office of Disability in Health and Human Services (HHS); and Mike Hash, coordinator of the HHS-White House reform efforts.

"My heart is broken," said Dawn Russell, ADAPT organizer in Denver, Colorado. "Throughout the Presidential campaign, ADAPT worked hard to educate the Obama campaign. We came to believe in the Obama promise of 'change,' and we really believed that President Obama was the person who really would 'free our people' from being imprisoned in nursing homes and other institutions. Untold numbers of people have died or been abused waiting for th eir freedom, and we just got told we aren't important enough and so we have to keep waiting."

ADAPT will be making visits to Congress during the week, seeking more co-sponsors for the Community Choice Act, legislation which would give older and disabled Americans the choice to live in their own homes and communities with the services and supports they need. Current Medicaid policy forces people into nursing homes and other institutions in order to get the assistance they need, despite the fact that both the aging and disabled communities have consistently indicated they prefer home and community based services to the generally higher cost institutional services that rob them of control of their lives.

"The President can give millions more people health insurance, but if health care reform doesn't include long term services and supports, then all the health care in the world won't keep those people from being forced into nursing homes against their will," said Linda Anthony, ADAPT Organizer from Pennsylvania.

# # # FOR MORE INFORMATION on ADAPT visit our website at http://www.adapt.org/

New Rule Enacted by Bush Administration Impedes Cases Against Nursing Homes

By Cindy Skrzycki
Tuesday, February 24, 2009; D02

The Bush administration shut off a source of information last fall about abuse and neglect in long-term care facilities that people suing nursing homes consider crucial to their cases.

The change, which affects the $144 billion nursing-home industry, was enacted with no public notice or attention.

"This is pretty stunning," said Mark Kosieradzki, a plaintiff attorney in Plymouth, Minn. "Nobody was told. It was just done."

The rule designates state inspectors and Medicare and Medicaid contractors as federal employees, a group usually shielded from providing evidence for either side in private litigation.

The restrictions affect about 16,000 nursing facilities and 3 million residents in the United States. The practical effect is to force litigants to go to greater lengths, including seeking court orders, to get inspection reports or depositions for cases they are pursuing or defending.

"This change hurts nursing-home residents and their families by allowing bad practices to be kept in secret by nursing homes and inspectors," said Eric M. Carlson, an attorney with the National Senior Citizens Law Center in Los Angeles. "Government inspectors have the right to go into nursing homes and investigate, and they learn things that residents and families otherwise could never find out."

The new rule, which was issued in September, generally prohibits state health departments and contractors from participating in private lawsuits involving facilities that are in the federal assistance program without approval by the head of the Department of Health and Human Services.

The rule was justified as being necessary to accommodate the hiring of new contractors to make Medicare payments to providers, perform audit and fraud reviews, and do survey, certification and enforcement work for the program.

Requests for these employees to participate in private cases "divert employees from their federal survey, certification and enforcement responsibilities," the Bush administration said in a supporting document. "The cumulative effect of these requests can impede these activities."

The effect of the directives has started to play out in the nation's courtrooms. Requests for information, once fairly routine, now are stalled between state and federal officials.

Anne Marie Regan, an attorney with the Kentucky Equal Justice Center, a nonprofit poverty legal advocacy and research center, said the change has slowed a case she is pursuing on behalf of an 85-year-old man who was evicted from a nursing home in 2007.

Priscilla Shoemaker, legal counsel for the American Health Care Association in Washington, said nursing homes "are in the same boat" because they also have difficulty getting information on how state inspectors determine penalties, citations and orders to shut down homes.

From the Washington Post.

Ohio Bill adds disability to hate crime law

State Sen. Eric Kearney (D-Cincinnati) is introducing a bill that would grant people with disabilities protection under Ohio's hate crime law.

Senate Bill 349 was prompted by February's attack of Ashley Clark, a mentally disabled Talawanda High School senior.

"Anyone can become disabled ... I think people realize that it's a great equalizer," Kearney said Friday.

"Most families have somebody, a relative, who is disabled and people will empathize with that."

Hate crime laws provide additional punishment for criminal offenses if the crime can be shown to be motivated by race or animosity toward specific groups of people.

If the bill is passed, it would put disability in the same category as race, color, religion, and national origin.

"This will put people on notice that the state of Ohio views those actions with the same severity as they do crimes against any other group," said Lin Laing, executive director for Center for Independent Living Options in Cincinnati.

Kearney is a member of the center's board of directors.

Ohio is one of 23 states that do not include disability as part of their hate crimes legislation, according to the National Conference of State Legislatures.

Does Alaska? Read more here on Cincinnati.com

Bills to Follow - HR 3194

NOTE: This entry will update as the bills status changes.

House Judiciary Committee Unanimously Passes Sensenbrenner/Hoyer Bill

June 18, 2008
FOR IMMEDIATE RELEASE
Contact: Raj Bharwani
(202) 225-5101

(WASHINGTON, DC) – Earlier today, by a vote of 27 to 0, the House Judiciary Committee unanimously passed HR 3195, the ADA Restoration Act, introduced by former Judiciary Committee Chairman Jim Sensenbrenner (R-Wis), and Majority Leader Steny Hoyer (D-MD).  Additionally, the House Education and Labor Committee also marked-up the bill, where it passed overwhelmingly by a vote of 43 to 1.  The following statement was made by Congressman Sensenbrenner at the Judiciary Committee mark-up:

“One of our finest moments occurred eighteen years ago when President George H.W. Bush signed the Americans with Disabilities Act into law.  It was with that stroke of a pen that this country took a significant step forward in eliminating the barriers that for far too long kept disabled Americans from fully participating in the American dream.  Prior to the Americans with Disabilities Act of 1990, disabled Americans faced not only physical barriers in almost all aspects of society but also attitudinal barriers, which relegated them to a form of second class citizenship. Moreover, because federal and state laws were ill-equipped to protect disabled Americans at the time, the false stereotypes and discriminatory treatment employed by others created a vicious cycle.

“Last summer, I joined with my friend, Majority Leader Steny Hoyer, to introduce the ADA Restoration Act (ADARA).  The bipartisan legislation that we introduced quickly garnered nearly 250 cosponsors.  We introduced the ADARA to enable disabled Americans utilizing the ADA to focus on the discrimination that they have experienced rather than having to first prove that they fall within the scope of the ADA’s protection.  With this bill, the ADA’s “clear and comprehensive national mandate for the elimination of discrimination on the basis of disability” would be properly restored and the ADA can rightfully reclaim its place among our Nation’s civil rights laws.“The ADARA was originally drafted as a response to a number of Supreme Court cases that chipped away at the broad protections of the ADA.  The impact of these Supreme Court decisions has been to exclude millions of disabled workers from the ADA’s protections and requirements for employers.  Let me say that again—millions of Americans who want to work and who were otherwise intended by Congress to be able to work free from discrimination, have had the door shut in their faces because of these decisions.“The courts have created a situation in which disabled Americans can now be discriminated against by their employers because of their impairments, but these citizens are not considered disabled enough by our federal courts to invoke the protections of the ADA.“This is unacceptable.  No other civil rights law, including Title VII of the Civil Rights Act of 1964, requires a victim of discrimination to first prove that she or he is worthy of the law’s protections before proving a discrimination case.  Nor should the ADA require such proof.  The ADA is a civil rights law and should be interpreted as such.“The Substitute Amendment that I am joining Chairman Conyers in offering reflects a hard sought compromise between members of the disability community and members from the business community.  By its very nature, no one is completely satisfied with a compromise.  Both sides made concessions to the other during their arduous negotiations.“As in the original ADA that passed Congress in 1990, the substitute keeps the requirement that an impairment must “substantially limit a major life activity” in order to be considered a disability.  As written, the ADARA would have broadened the definition of disability.  The compromise defines “substantially limits” as “materially restricts” and contains explicit language rejecting the Supreme Court’s more restrictive interpretation.“The substitute also contains a non-exhaustive list of examples of major life activities.  It further notes that major life activities also include major bodily functions and contains a non-exhaustive list of examples of major bodily functions.“The substitute amendment contains language making it clear that the “regarded as” prong of the definition covers situations in which an employee is discriminated against because of his or her actual or perceived impairment, whether or not the impairment is perceived to substantially limit a major life activity.  “Regarded as” would not apply to transitory and minor impairments where an impairment is considered “transitory” if it has an expected duration of six months or less.  Accommodations need not be made to someone who is disabled solely because he or she is “regarded as” disabled.“The ADA has been one of the most effective civil rights laws passed by Congress.  Its continued effectiveness is paramount to ensuring that the transformation that our nation has undergone continues in the future and that the guarantees and promises on which this country was established continue to be recognized on behalf of all its citizens.“The substitute amendment before us today is the result of hard work and countless hours of good-faith negotiations between staff, disability advocates, and business groups.  I look forward to passage by this Committee today, and expect broad bipartisan support when this bill reaches the House floor.”

Campaign 08

I've added a new category. Campaign 08. Look there for voting and candidate information.

And remember to VOTE. Health care and disability rights issues depend on your vote.

Grade-schooler gains life lessons in D.C. trip

By Colleen Surridge
Parsons Sun

While her classmates sat in their classroom in Parsons learning the three Rs, 9-year-old Allie Jones was in Washington, D.C., last week learning lessons in history, politics and life.

It is in Washington where Allie saw direct action in progress -- the same type of direct action that has led to change over the years from the civil rights movement.

Martin Luther King Jr. once wrote in a letter from Birmingham jail, "Why sit-ins, marches and so forth? Isn't negotiation a better path? You are quite right in calling for negotiation. Indeed, this is the very purpose of direct action. Nonviolent direct action seeks to create such a crisis and foster such a tension that a community which has constantly refused to negotiate is forced to confront the issue. It seeks so to dramatize the issue that it can no longer be ignored."

Allie was in Washington for the 25th anniversary of ADAPT (American Disabled for Attendant Programs Today), a group that uses direct action to fight for legislation to promote services in communities instead of warehousing people with disabilities in institutions and nursing homes.

"It's about having access to everything, so they have their rights like everyone else does," Allie said.

Way to go Allie! Read more here in the Parsons Sun.

"Oh man have I taken some heat over this," Rep. Coghill

To elderly, health stipend no gray issue $120 A MONTH: Seniors blast Coghill for killing attempt to extend program.

By JULIA O'MALLEY, jomalley@adn.com

Published: June 15, 2007

Lynn Cragholm lived 73 years without walking the street in protest, but her lack of experience didn't show Thursday at the corner of Fireweed Lane and A Street.

Facing traffic, her hair swept into a graceful, gray top-knot, she waved a sign that read: "Work Hard, Pay Taxes, Raise a Family, Get Shafted by Rep. Coghill."

Cragholm joined about 60 seniors who demonstrated on all four corners of the intersection in support of SeniorCare, a program that provides $120 a month to low-income people over 65. SeniorCare is set to end June 30, but supporters hope to pressure the Legislature to extend it in a special session that begins here on June 26.

You can read the full story online at:

http://www.adn.com/news/alaska/anchorage/story/8978567p-8893993c.html

Rally in support of SeniorCare scheduled for June 14 in Anchorage

Seniors and advocates for low-income seniors are scheduled to carry signs and join in a public rally in support of Alaska’s “SeniorCare” program Thursday, June 14 at 11:30 a.m. at Access Alaska 121 W. Fireweed Lane, Anchorage.

SeniorCare provides $120 a month to low-income seniors (singles over 65 with annual incomes of less than $16,133 and couples with annual incomes of less than $21,641). Most recipients use the benefit for utilities, food, rent, or medications. Recipients of the assistance program as well as senior advocates are expected to make comments. Legislators have also been invited to attend.

WHAT: Public rally in support of the SeniorCare program
WHERE: Access Alaska Offices, on the corner of “A” and W. Fireweed
WHEN: Thursday, June 14, 2007 from 11:30 am – 1:00 pm
WHO: Seniors and senior advocates

Download file

ADVOCACY ALERT: Independent Living Needs Your Voice on April 10th!

Advocates for Independent living programs in the State of Alaska will have an opportunity to express their support for independent living services on Tuesday afternoon April 10th 2007 from 5 – 6:30 PM at the Legislative Information Office room 308 at 1292 Saddler Way, located on the third floor of the new USA Financial Center Building across from the Walmark store.

The occasion at the Legislative Information Office is a hearing by the Alaska Legislature’s Senate Finance Committee whose members will be in the process of listening by phone (from their meeting room in Juneau) to a couple of days of verbal input from members of the public from many sites throughout the State. The Senate Finance Committee is working on their version of the next year’s state budget and Tuesday April 10 from 5 PM through 6:30 PM is the time allotted for input from members of the public living in Fairbanks and the surrounding areas.

Each member of the public who had signed up at the LIO to give verbal testimony may use up to two minutes to deliver their message. For those of you who may be first timers, The LIO has a large screen monitor which shows “real time” the Senate Finance Committee members as they listen to the public from their meeting in Juneau. The Committee members, however can only hear our voices, they can not “see” us.

For advocates who want to speak in support of independent living services, what is there to say to the legislators? I suggest you speak from your own personal experience of how independent living services have made a difference in your life or that of someone from your family. Your own personal story will have a profound impact on the legislators. Why? For the most part, our legislators are pretty decent people trying to do the best job they can as they design next year’s state’s budget. When they hear you and others describe how independent living services have made a big difference in your lives, the legislators will learn the value of independent living programs from the people who use the program.

One more suggestion. When you are talking about independent living services and how they helped you, be specific in terms of their funding source. The independent living funds that support Access Alaska come from the Department of Labor’s budget. The legislature will have heard from many many Alaskans over the course of their hearing describing different programs and services they would like in the budget. By your mentioning in your statement about how independent living services funded from the Department of Labor helped you, no confusion will arise about funding.

What more is there to mention? You, as advocates, by your testimony on April 10th will be supporting those who have yet to receive independent living services. For that we, at Access Alaska are proud of your efforts, and thank you.

WHAT: Legislature’s Senate Finance Committee takes public input on the state’s budget
WHEN: APRIL 10TH 5 – 6:30 pm (arrive 30 minutes early to sign up and get a seat!)
WHERE: Legislative Information Office, room 308, 1292 Saddler Way ( USA Financial Center)

What if you can’t come to the LIO on April 10th? Can you still voice an opinion about the budget?
Yes!!! You call a Senator’s office and speak to the staff or send them a fax. Make sure to ask us how.

Would you like additional information please contact any of the following Access Alaska Fairbanks staff: Doug Toelle, David Jacobson, Jim Kreatschman at 479-7940.

AARP CALLS ON SEN. MURKOWSKI AND SEN. STEVENS TO TAKE A STAND

Group Wages Campaign in Alaska to Help Lower Medicare Drug Prices

ANCHORAGE, AK – With the aid of 89,000 members, AARP is calling on U.S. Senators Lisa Murkowski and Ted Stevens to stand with the overwhelming majority of Alaskans and vote to give Medicare the power to negotiate for lower prescription drug prices. Murkowski and Stevens are two of the few remaining Senators yet to publicly state their position on this important issue, and their votes are critical to the bill’s success.

On Wednesday, April 4, AARP members throughout Alaska and across the country will be calling Senators and urging them to support legislation that could help lower Medicare drug prices for Alaska’s Medicare beneficiaries.

According to a recent AARP poll, 85% of Alaska residents want Medicare to leverage the buying power of 43 million Medicare members to negotiate lower prices for prescription drugs. “You would think this would be an easy decision for Senator Murkowski and Senator Stevens. Our polls show that Alaska residents support giving Medicare the power to bargain for lower drug prices,” said Ken Osterkamp, AARP Alaska State Director. “AARP members want – and deserve - to know if Senator Murkowski and Senator Stevens will side with their constituents or with the pharmaceutical industry on this important issue.”

Americans pay more than anyone else in the world for most brand-name drugs. In 2006, on average, brand name prescription drug prices increased 6.2 percent for a sample of 193 brand-name drugs widely used by older Americans. During that same period general inflation was just 3.2 percent. Older Americans are the largest consumers of prescription drugs, with a typical senior taking four prescriptions daily.

Giving Medicare the authority to use its bargaining power to negotiate with drug companies to help achieve even lower drug prices would strengthen the Medicare drug benefit even further.

Earlier this year, the U.S. House of Representatives passed H.R. 4, the “Medicare Prescription Drug Price Negotiation Act of 2007” by a bipartisan vote of 255 – 170. AARP strongly supported H.R. 4 and is now putting its weight behind passing similar legislation in the Senate.

AARP is tracking key votes in the 110th Congress and reporting back to its 38 million members how Congress votes on legislation AARP members are interested in like health care.

“Giving Medicare bargaining power is a key issue for AARP Alaska’s 89,000 members, and we will be letting them know how their elected officials voted on this matter,” said Osterkamp.


Contact info

Murkowski, Lisa

709 HART SENATE OFFICE BUILDING WASHINGTON DC 20510
(202) 224-6665
Web Form: murkowski.senate.gov/contact.cfm

Stevens, Ted

522 HART SENATE OFFICE BUILDING WASHINGTON DC 20510
(202) 224-3004
Web Form: stevens.senate.gov/public/index.cfm?FuseAction=Contact.Em...

 

Sen. Clinton Announces Initiative to Improve Detection, Treatment of TBI

March 29, 2007 

Joined by Wounded Soldier, Caregivers, Advocates for Military Families, Medical Experts

Washington, DC - Today on Capitol Hill, Senator Hillary Rodham Clinton (D-NY) joined with advocates for wounded soldiers and their families to announce a new legislative initiative, co-sponsored by Senator Susan Collins (R-ME), to improve the detection, assessment and treatment of traumatic brain injury and expand support systems for members and former members of the Armed Services with traumatic brain injury and their families. Senator Clinton also announced introduction of legislation to help ensure wounded soldiers receive the disability benefits they need and deserve and to further protect military family financial benefits. Senator Clinton was joined by Sergeant Ted Wade U.S Army 82nd Airborne Division, who incurred a severe traumatic brain injury and his wife Sarah Wade of Chapel Hill, NC; Lee Woodruff, TBI caregiver and co-author with husband Bob Woodruff of New York Times bestseller In An Instant; Dr. Bert Vargas, a resident at New York University School of Medicine who served as an Air Force flight surgeon in Iraq and leadership from the Wounded Warrior Project, the Military Officers Association of America, the National Military Family Association, the Brain Injury Association of America and the American Academy of Neurology.

"If you serve your country your country must serve you. This is the promise our country must keep to the men and women who enlist, who fight and who return home often bearing the visible and invisible scars of sacrifice. We have a duty to reform and ready the military for the increasing number of veterans suffering from complex injuries like traumatic brain injury. Today we are taking steps needed to ensure our men and women in uniform and their families have the care and support they need and deserve," said Senator Clinton.

Senator Clinton today introduced legislation to build on the groundbreaking "Heroes at Home" initiative she authored and secured in law last year aimed at helping U.S. troops and their families to transition after deployment in Iraq and Afghanistan and get the help they need with readjustment to work and coping with post-traumatic stress disorder and TBI. Today, Senator Clinton announced a new initiative to expand Heroes at Home by:

  • Improving the screening process for our troops before deployment to improve TBI diagnoses after deployment. Traumatic brain injury, which affects approximately one out of every 10 returning service members, has been identified as the "signature wound" affecting soldiers deployed to Iraq and Afghanistan. Multiple deployments and prevalent use of IEDs have put service members at increased risk of sustaining more than one mild or moderate TBI. However, mild and moderate TBI may go undetected, especially if a service member has sustained more obvious injuries. It also can be difficult to distinguish mild TBI from Post Traumatic Stress Disorder since both conditions have common symptoms, such as irritability, anxiety and depression. Senator Clinton's bill will improve detection of mild and moderate TBI by implementing an objective, computer- based assessment protocol to measure cognitive functioning both prior to and after deployment. Senator Clinton's bill will require that the same assessment tool be used across all branches of the Armed Services and for every member of the Armed Forces who will be deployed to Iraq and Afghanistan.
  • Helping families struggling to take care of a loved one with training and certification for dealing with brain injuries and psychological injuries. Family members of returning soldiers with TBI are often ill-equipped to handle the demands of caring for their loved one, which in some bases can become a full-time responsibility. Senator Clinton's bill will establish a Traumatic Brain Injury Family Caregiver Personal Care Attendant Training and Certification Program, which would train and certify family caregivers of TBI patients as personal care attendants, enabling them to provide quality care at home and at the same time qualify for compensation from the VA.
  • Expanding Access to Needed Care. Service members and veterans continue to face problems in accessing needed medical and mental health care, especially veterans or Guard and Reserve members who live in rural areas. Senator Clinton's bill will help increase the reach of needed care for TBI by expanding use of telehealth and telemental health services. Senator Clinton's bill will create a demonstration project, administered jointly by the Departments of Defense and Veterans Affairs that would use telehealth technology to assess TBI and related mental health conditions and facilitate rehabilitation and dissemination of educational material on techniques, strategies and skills for servicemembers with TBI.

"The proposals in this legislation were built on the recommendations of family caregivers now tending to the wounds of their loved ones who have incurred Traumatic Brain Injuries on our nation's behalf. Senator Clinton and the Wounded Warrior Project have listened to these families and their requests for help and we applaud her for her leadership on this legislation. We stand committed to assisting the Senator in seeing this bill through to enactment," said John Melia, Executive Director of the Wounded Warrior Project.


The Heroes at Home Act of 2007 is endorsed by the Wounded Warrior Project, National Military Families Association, Military Officers Association of America, American Academy of Neurology and Brain Injury Association of America.


Senator Clinton today also announced introduction of legislation to help ensure wounded soldiers receive the disability benefits they need and deserve and to further protect military family financial benefits:

  • Restoring Disability Benefits for Injured and Wounded Warriors Act of 2007. Following up on complaints she heard from New York soldiers at Walter Reed about widespread problems with disability claims, Senator Clinton today introduced legislation that will restore disability benefits for wounded and injured members of the Armed Forces. The act will direct reviews of disability claims, traumatic injury claims and the Physical Evaluation Board process, and re-open cases that warrant an increased disability benefit rating or traumatic injury payment. In addition, the bill will increase the availability of legal counsel for members appealing their disability cases, and direct the GAO to investigate efforts currently being made by the Department of Defense to address deficiencies in the Disability Evaluation Systems; the adequacy of the Department of Veterans Affairs Disability Schedule for Ratings as it relates to the nature of wounds our warriors suffer in combat today; and to report on the standards and procedures of Physical Evaluation Boards.
  • Protecting Military Family Financial Benefits Act of 2007. Senator Clinton also introduced legislation that will protect financial benefits for military family members by closing gaps in coverage for Death Gratuity and Survivor Benefits beneficiaries and improve pre-deployment counseling and services for all members of the Armed Forces. Everyday single parents deploy to distant battlefields and leave their minor children in the care of a financially ill-prepared guardian or caretaker. Unfortunately, when tragedy strikes and a military service member makes the ultimate sacrifice, minor dependent children and families are excluded from receiving benefits and entitlements. In too many cases, pre-deployment systems and processes designed to protect military family financial benefits are under-resourced or not available and create unnecessary burden for survivors. Senator Clinton's bill will require each military service to provide adequate pre-deployment counseling and services to every deploying member of the Armed Forces to ensure that families and dependents receive survivor benefits and entitlements.

These bills are supported by the Wounded Warrior Project, National Military Families Association, Military Officers Association of America, American Legion and the Gold Star Mothers.

As New York's first Senator to serve on the Senate Armed Services Committee, Senator Clinton has made it one of her top priorities to ensure that our brave men and women in uniform have the healthcare and support they need. She has pressed for an independent investigation of the conditions at Walter Reed and called for a new GI Bill of Rights to once again honor the service and invest in the future of our men and women in uniform. She authored legislation signed into law last year that required an audit of widespread pay issues wounded soldiers are facing, recently released by the Army showing continuing problems. Senator Clinton has fought to ensure service members have the body armor they need. She has also secured in law access to TRICARE military health benefits for all drilling members of the National Guard and Reserves and their families.

Source: Senator Clinton
www.clinton.senate.gov/news/statements/details.cfm?id=271591&&

Alaska’s Centers for Independent Living (CILs) FY08 Budget Requests

Centers for Independent Living are requesting the following three budget items:

A permanent increase of $100,000 in State Independent Living funding.

  • CILs continue to serve more people each year while funding has remained relatively flat over the past decade. 112% more disabled and senior Alaskans have been served in the past three years – 3,200 persons in 2006 alone.
  • Costs to provide these preventive services that keep people out of expensive institutions are rising, stretching and even breaking Alaska’s CIL budgets.
  • CILS are only 9% State funded. Alaska’s CILs leverage State dollars, and are extremely resourceful, cost-effective agencies providing necessary services on behalf of the State of Alaska.

A $94,000 increase to support interpreter referral services for Alaskans who are deaf and hard-of-hearing.

  • This program allows deaf and hard of hearing Alaskans whose primary language is American Sign Language, to access medical and legal services, the justice system and employment and training.
  • The program has been flat-funded for over 17 years, while the deaf population is growing in areas like the Kenai Peninsula, where no interpreter program currently exists.
  • Agencies have been subsidizing the operations of this service for years, while serving more people every year.

A twelve percent increase in the state’s reimbursement rate for Personal attendant services.

  • This combined federal and state funded program provides in home supports for the frail, elderly and Alaskans who experience disabilities to help them to continue living in their homes rather than having to seek care in nursing and assistive living homes.
  • The PCA program reimbursement rate has been flat funded since 1998. A twelve percent increase will help assure that PCA programs can continue to pay for their operating costs.

2007 Campaign for PCA Reform

The Campaign for PCA Reform started in 2004, sponsored by three Alaska-based companies (Ready Care, Center for Community, and Access Alaska), that were concerned about the extraordinary growth in the Personal Care Attendant (PCA) budget during the previous years. Through active education and advocacy with both the Administration and the Legislature, the Campaign put forward early versions of what became the 2005 Legislative Intent Language that encouraged the Department to harness the tremendous growth in the PCA program. The Campaign has continued to provide leadership to the PCA industry as a whole and works closely with the Department of Health and Social Services to better govern this vitally important service for Alaskan elders and individuals who experience disabilities.

Alaska’s Personal Care Program Must Have:

  • Integrity
  • Accountability
  • Sustainability
We believe that everyone in the PCA system has a role to play in upholding these principles: DH&SS, PCA Provider companies, and PCA consumers.

The Campaign for PCA Reform has been working since 2004 to make these principles a reality at the highest levels in PCA service delivery, in State policy, and in management of the program. Our efforts are discussed in detail in our attached Briefing Paper.

Top PCA CAMPAIGN Issues for the 2007 Legislative Session.
(Synopsis)

  • Legislation To Strengthen State Medicaid Audits, ensuring accountability and fairness, and protecting the State of Alaska from undue Federal fiscal recoveries.
  • Legislative Support For Annual Rate Readjustments, so that PCA Providers never go another 10 years without any rate increase to keep up with increasing business and compliance costs. While PCA rates were frozen from 1998 through the present, Alaska Medicaid paid hospitals and nursing homes with automatic and annual index-based rate increases every year since 1999, averaging over 3% per annum.
  • One Time Catch Up Adjustment In FY2008 Operating Budget. Medicaid has not allowed a single payment increase in PCA rates since 1998. We are seeking a 2.5% per annum equivalent, with a raise from the 1998 rate of $21 per hour to $26.88 for FY2008.
  • To Assure The Legislature That Improvements Have Been And Are Being Made In The Integrity And Quality Of Dh&ss Management Of The Pca Program. We are available at any time to describe the progress that the State and Providers have made.<
BRIEFING PAPER ON 2007 CAMPAIGN FOR PCA REFORM
Progress On Turning Principles Into Reality

Integrity:
In April, 2006 new State regulations governing the PCA program were signed into law. These new regulations, among other changes, implemented a third-party assessor of services across the State. Professionally trained assessors have greatly improved program integrity by replacing the provider agency in its previous dual role as both assessor of eligibility/service level and provider. Third-party assessors also have increased the quality of assessments by ensuring only those individuals truly in need are receiving PCA services, and only at the accurate level of services necessary to maintain safe community living. PCA services are now based on a professionally conducted and objective assessment with no potential for conflict of interest.

Accountability:
With the implementation of SB41, PCA providers were audited for the first time in the history of the program. According to data provided by the Department of Health and Social Services, during audits conducted in FY2005 the billing error rate among PCA services providers was 14.42%. Through efforts of the PCA Provider’s Association and the technical assistance provided by the Division of Senior and Disability Services, in FY2006 the billing error rate dropped significantly to 4.75%. The Departmental goal for FY2008 is to show additional improvement of another 10% or 4.28%. PCA service providers have embraced the concept of accountability and will continue to strive for lower error rates. (Please note that billing “errors” are not necessarily “overpayments,” in fact most of the audited “errors” did not overpay the provider.)

Sustainability:
Ideas about the best way to care for the elderly and people with disabilities have undergone dramatic changes in the past several decades. In Alaska and at the national level, the pendulum has swung towards in-home care and greater control over services by the recipient of care. As our population ages and chooses to remain in Alaska, the need for in-home support services will grow as well. PCA services are often the first line of defense, after familial and community support, for seniors who require hands-on assistance to remain in their own homes. With the assistance of a PCA, seniors are able to meet their basic health needs often preventing the need for more costly medical intervention or out-of-home placement. PCA services have effectively reduced the amount of time an individual may need to spend in very costly nursing homes at the end of his or her life; however, there is a cost to the provision of PCA services as well.

In order to sustain this viable service, PCA Providers must be adequately compensated to meet the rising operational costs. The Department of Health and Social Services has identified sustainability of a qualified provider pool as a key component challenge stating: “In order to provide affordable access to quality health care services to eligible Alaskans, a sufficient supply of providers must be enrolled in Medicaid. A strategy to maintain provider participation is for provider reimbursement rates to keep pace with health care costs. Since provider participation in Medicaid is voluntary, if Medicaid’s rates are too low providers may stop seeing Medicaid clients.”

Top PCA CAMPAIGN Issues for the 2007 Legislative Session
(Expanded)

Legislation To Strengthen State Medicaid Audits
We support the ongoing technical assistance efforts of the Department in assisting PCA Providers in continuously improving their accuracy rates on billing issues. Now that the State has good background data, as a result of SB41, we are seeking legislation to further strengthen Alaska’s system for auditing Medicaid providers, particularly in dealing with collection of “overpayments.” We urge the Legislature to follow the example of many other states, and adopt “safe harbor” audit rates and audit recovery principles:

  • 10% or less in overpayment billing errors would incur only the obligation to pay back the difference between the correct billing amount and the overpayments (if any), and to take corrective action to prevent future errors, so long as no intent to defraud or to ignore prior corrective actions is indicated. (No extrapolation assessment.)

  • Billing errors, of any rate, that result in underpayment to the provider or that result in neither underpayment nor overpayment shall not be subject to payback to either provider or the State, but shall be subject to corrective action regulations of DH&SS (e.g., requiring proof of improved provider documentation practices).
  • When the rate of overpayment errors is more than 10%, only the average amount of overpayment above the correct billing amount may be extrapolated against the rest of the provider’s Medicaid billings for the audit period. (Again, assuming no fraudulent intent or disregard of prior corrective action.)
This will not penalize those service providers who make simple billing errors yet still deal severely with those who are potentially committing fraudulent acts.

Legislative Support For Annual Rate Readjustments
The rates for reimbursement for PCA services have been frozen in regulation since 1998. We request regulations setting an annual adjustment to the PCA rate equal to the change in the consumer price index or the CMS nursing facility market basket (a national cost data study). It should be noted that Alaska’s Medicaid payment rates for hospitals and nursing homes are “re-based” every four years, and on the years in between the rates go up automatically by the percent of change in the CMS market basket. We support the Department’s efforts to establish rate-setting methodology that establishes uniformity among provider types of comparable services. This must happen to ensure that PCA providers are adequately compensated for the provision of their services. The cost of providing PCA services, as with all goods and services, continues to rise annually, including workers’ compensation insurance for this high-risk category of workers.

One Time Catch Up Adjustment In FY2008 Operating Budget.
We request a one-time “catch-up” adjustment of the current rate to reflect a 2.5% per annum adjusted rate from November 1998 through June 2008. For FY2008, this would raise the PCA rate to $26.88 an hour. Please note that the Governor’s budget includes funding for an 8% average increase between FY2004 and FY2008 in the Medicaid rates for hospitals and nursing homes, which are “re-based” every four years. PCA rates have not been adjusted since 1998.

Legislative Assurance Of Improvements In Integrity And Quality Of DH&SS Management Of PCA Program.
We support the continued efforts of the Department of Health and Social Services in conducting third-party assessments to determine eligibility and service level needs. PCA service providers are able to focus their attention on the provision of high-quality in-home support services without any potential for conflict of interest. Consumers can choose their service provider based on the quality of care they receive.

For more information, please contact:

Sandra J. Heffern
Chief Executive Officer
Ready Care
800 918-3045
sheffern@jobready-ak.com

Connie J. Sipe
Executive Director
Center for Community
csipe@cfc.org

James Beck
Executive Director
Access Alaska
800-770-4488
jbeck@accessalaska.org

Download PDF file

Bill Introduced to Increase Access to Community-Based Services

On March 7, 2007, Senators Tom Harkin (D-IA) and Arlen Specter (R-PA) introduced the Community Choices Act (S. 799) which would give individuals who are eligible for nursing home services or other institutional care equal access to community-based services and supports. The bill would provide an increase in federal funds to help states develop their long-term care infrastructure and to enhance their ability to provide home and community-based services. The bill would also create a demonstration project to evaluate service coordination and cost sharing approaches for those eligible for both Medicaid and Medicare. For more information, visit: thomas.loc.gov.

The bill does not appear to be online yet.

'Help us live where we want to live, how we want to live.'

Minnesota / Independence leads list of baby boomers' old-age wishes
Study urges fresh options to support in-home care

Minnesota's baby boomers want exactly what the state's long-term care system lacks: technology and creative programs that will help them remain independent and at home in their frail and elderly years.

That is one of the main conclusions of a study and survey being released today by Ecumen, a Shoreview-based provider of nursing homes and community services for the elderly.

Executives with the organization hope the results will inspire lawmakers and caregivers to try new approaches and programs before the massive boomer generation reaches retirement age.

Nine of 10 boomers in the survey said they want to live in their own homes rather than in rental apartments or nursing facilities. Most of the 564 survey respondents, ages 42 to 60, said they would pay more for a long-term care system that provides better community services.

"Boomers are saying, 'Give us some more options,' " said Eric Schubert, Ecumen's communications director. " 'Help us live where we want to live, how we want to live.' "

More here

Alaska Medicaid report offers recommendations for cost savings

Tribal health care reform may be a key to controlling the mounting costs of Alaska's Medicaid program, according to a report commissioned by the Alaska Legislature.

The report, penned by the Pacific Health Policy Group and presented to House and Senate committees on Tuesday, offers recommendations that its authors say could save the state between $80 million to a $100 million a year while improving health care services to Alaska Natives and others.

Read more in the Anchorage Daily News

"I sympathize with how complex Medicaid is for clients, health care providers, program managers, as well as employees. We also find it difficult as legislators to find a legislative fix for most of these problems," Senate President Lyda Green, R-Wasilla said.

State explores Medicaid changes to hold down costs

"A report commissioned by the Legislature has warned the state that the health care costs for Alaska’s neediest populations will continue to rise significantly during the next 10 years unless reforms are adopted to the Medicaid system. "

Read more... (ADN registration required)

From the Anchorage Daily News