New pictures on Flickr

Pictures from NCIL 2009. View them here.

10th anniversary of freedom for people with disabilities

June 22 marks the 10th anniversary of a landmark ruling for people with disabilities. Read more here.

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Thank you Senator Begich and Congressman Young

Both are co-sponsors of the Community Choice Act. Please contact Senator Murkowski's Office and ask her to co-sponsor this important piece of legislation

H.R. 1670 and S. 683

The Community Choice Act will help bring an end to the shameful institutional bias in this country. Currently, every state that receives Medicaid is required by law to provide nursing facility services, but community-based services remain optional, leaving them open to funding cuts year after year as institutions remain prosperous. As a direct result, millions of seniors and people with disabilities are forced into institutions to receive medical or personal assistance services.

The Community Choice Act requires states to offer community-based supports for Medicaid-eligible consumers who want to stay in or return to their homes and communities. It will provide a real alternative to institutional care that many states lack, as well as saving Medicaid billions of dollars.

The average cost of a private nursing home room is $74,000, yet the cost of a full-time home health aide only $42,300 per year. When totaled, the savings to states and the federal government (simply by allowing people to receive services in their homes) will allow for expanded healthcare services and the elimination of lengthy waiting lists on which people currently sit for years at a time, waiting to receive services anywhere but in an institution.

The Community Choice Act is a cost-effective initiative as well as the right thing to do.
(Thanks to NCIL)

World Multiple Sclerosis Day, 27 may 2009

A little music video to get you going

This film is a joint project of MSIF and the Hertie Foundation.

More on World MS Day here.

100 Facebook Fans

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 Access Alaska now has 100 fans on Facebook. Become a fan now!

 

99 Arrested as ADAPT Blocks Independence and Constitution Avenues on the Hill, then Crawls Up the Capitol Steps

For Immediate Release:
April 28, 2009
For Information Contact:
Bruce Darling 585-370-6690
Marsha Katz 406-544-9504
http://www.adapt.org

99 Arrested as ADAPT Blocks Independence and Constitution Avenues on the Hill, then Crawls Up the Capitol Steps

Washington, D.C. --- ADAPT, the nation's largest cross-disability, grassroots disability rights organization, took the fight to include long-term services in Health Care Reform up to Capitol Hill today. On Monday, Obama administration officials made it clear that the administration was not going to provide leadership on getting long-term services included in health care reform, saying it was up to Congress.

"I guess what happened at the White House kind of got us wondering who is leading the country, the President or Congress," said Bob Kafka, ADAPT Organizer from Austin, Texas.  "Sad to say but President Obama gets a D on disability rights after his first hundred days. Throughout his campaign and currently on his website he promises to support independent, community-based living for Americans with disabilities by enforcing the Community Choice Act, which would allow Americans with significant disabilities the choice of living in their community rather than having to live in a nursing home or other institution.  Many of us who voted for him feel angry and betrayed that he isn't keeping his promise."

The Community Choice Act (CCA) (S. 683, HB1670), introduced in March 2009 by Sen. Tom Harkin (IA) and Rep. Danny Davis (IL), would remove what is known as the 'institutional bias' in Medicaid. B Currently, Medicaid pays for older and disabled people to go to nursing homes and institutions, but won't pay for the same assistance, generally at a lower cost, in a person's own home. Many states have limited or no home and community based services with lists that keep people waiting for years in institutions and nursing homes before they have any hope of getting services. Some wait so long they die before their name reaches the top of the list.

"It's no surprise we decided to have a presence on Capitol Hill today," said Mark Johnson, ADAPT Organizer from Atlanta, Georgia. "We blocked streets to make it visibly clear that we aren't going awayb& and we won't go away until CCA passes or is included in Health Care Reform. Research has shown that people who live in the community are healthier and have fewer secondary conditions. It's fiscally irresponsible to increase health care costs by not insuring that people have the choice to receive services and supports in their own homes.  And it's bad policy to put all the dollars only into front-end health care, once again denying people with disabilities their civil rights and forcing them to continually be the last people served."

After police arrested 99 people from both the House and Senate sides of the Capitol, the remaining 400 ADAPT members went to the Capitol, many B spilling out of their wheelchairs and crawling up the Capitol steps to hold an impromptu CCA rally, reminiscent of the famous stair crawl on the day the ADA was passed in 1990.

ADAPT winds up its week in Washington on Wednesday by holding a joint rally with SEIU, the fastest growing, largest home care union in the country, with a membership of over 420,000. Sen. Harkin will speak at the rally, as will an ADAPT member and his SEIU attendant. People with disabilities and seniors want workers who are paid a living wage, who have health care benefits, and time off. Supporting a fairly compensated workforce reduces turnover, increases reliability and insures a better trained attendant workforce for those who need assistance in their daily lives.

"After the rally, we will go in teams to visit every member of Congress, asking them to co-sponsor CCA and include long-term services in Health care reform," said Barb Toomer, ADAPT Organizer from Salt Lake City, Utah.  "There will be well over 1000 people visiting Congress on Wednesday from a number of different disability and provider groups, all with the same message: pass CCA and include long-term services."

### FOR MORE INFORMATION on ADAPT visit our website at http://www.adapt.org/

ADAPT Press Release

For Immediate Release:
April 27, 2009
For Information Contact:
Bruce Darling 585-370-6690
Marsha Katz 406-544-9504
http://www.adapt.org

91 Arrested When ADAPT Told Obama Administration Won't Support Inclusion of Long Term Services in Health Care Reform

Washington, D.C.--- Ten members of ADAPTB met with Obama Administration officials in the White House today, and came away disappointed at the lack of commitment from the administration on inclusion of long term services and supports in health care reform. The administration stated that its only commitment currently is to extend insurance to the people who are uninsured, and that the people in nursing homes and institutions would need to continue to wait until an unspecified time in the future when it is proven that the health care reform worked. Angered by that response, 500 ADAPT members immediately stretched out along the White House fence, using handcuffs and chains to secure themselves. The Capitol Police ultimately arrested 91 people.

"This is unequivocally a civil rights issue, and we thought we had a civil rights president," said Bruce Darling, ADAPT Organizer from Rochester, New York. "He took the oath of office on the Lincoln bible, and has spoken repeatedly about inclusion and integration. But after today, it seems clear that inclusion doesn't apply to us or to the thousands of people trapped for years behind institution and nursing home walls and those of us who are aging with nursing homes looming in our futures. Instead of the promised 'change' we are just getting more of the same old thing."

Obama officials in the one hour meeting with ADAPT included Nancy-Ann De Parle, Counselor to the President and Director of the White House Office of Health Reform, aka the President's Health Care Czar; Jeff Crowley, Director of Office of National AIDS Policy and an advisor on the administration's development of disability policies; Henry Claypool, Director of the Office of Disability in Health and Human Services (HHS); and Mike Hash, coordinator of the HHS-White House reform efforts.

"My heart is broken," said Dawn Russell, ADAPT organizer in Denver, Colorado. "Throughout the Presidential campaign, ADAPT worked hard to educate the Obama campaign. We came to believe in the Obama promise of 'change,' and we really believed that President Obama was the person who really would 'free our people' from being imprisoned in nursing homes and other institutions. Untold numbers of people have died or been abused waiting for th eir freedom, and we just got told we aren't important enough and so we have to keep waiting."

ADAPT will be making visits to Congress during the week, seeking more co-sponsors for the Community Choice Act, legislation which would give older and disabled Americans the choice to live in their own homes and communities with the services and supports they need. Current Medicaid policy forces people into nursing homes and other institutions in order to get the assistance they need, despite the fact that both the aging and disabled communities have consistently indicated they prefer home and community based services to the generally higher cost institutional services that rob them of control of their lives.

"The President can give millions more people health insurance, but if health care reform doesn't include long term services and supports, then all the health care in the world won't keep those people from being forced into nursing homes against their will," said Linda Anthony, ADAPT Organizer from Pennsylvania.

# # # FOR MORE INFORMATION on ADAPT visit our website at http://www.adapt.org/

Abuse At Texas Institutions Is Beyond 'Fight Club'

At a state institution for people with mental retardation in Texas, six staff members have been charged with taking part in staging what have been called human cockfights, using residents with mental retardation. The accusations have raised questions about how workers trained and hired to care for some of the most vulnerable people in society could instead treat them with cruelty.
...

Beth Mitchell, an attorney at Advocacy Inc., a state legal group set up by Congress to protect people with disabilities, says one problem is that staffers get little training and often work in isolated areas. "These are large institutions that are in rural areas. The staff only need a GED or high school education. They get paid extremely minimum wages — $22,000 a year — and they don't get much training," she says.

Mitchell's law center has been pressuring Texas officials to move residents out of the institutions and into smaller group homes.

She thinks there's something about the impersonal nature of large institutions that breeds abuse.

Researcher Dick Sobsey, who studies violence against people with disabilities at the University of Alberta in Canada, agrees. "There's really sometimes peer pressure for people to engage in abuse," says Sobsey. Although many good, caring people come to work at institutions, he says some cruel ones come, too. And they can sort of infect other workers.

"Where some employees are abusive and others are not, the ones who are not abusive, there's always a danger that they're going to report the ones who are. If everybody's abusive, then everybody's hands are dirty, and so they're safe with each other," Sobsey says.

Sobsey says this is more likely to go on at facilities that are in out-of-the-way places or out of the public eye. In Corpus Christi, the alleged abuse was on the late-night shift, when staff levels were low.

Sobsey says one way to reduce abuse is to make institutions smaller and link them to communities such as families and churches. That way, they're less isolated and more people are watching.

Read and Listen on NPR here. Story by Joseph Shapiro author of the book No Pity : People with Disabilities Forging a New Civil Rights Movement.

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Aimee Mullins: How my legs give me super-powers

Athlete, actor and activist Aimee Mullins talks about her prosthetic leg -- she's got a dozen amazing pairs -- and the superpowers they grant her: speed, beauty, an extra 6 inches of height ... Quite simply, she redefines what the body can be.

Think different about disability.

From TED, watch it here.
Aimee Mullins website here.

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NewsMiner - Letter to the Editor SB 32

March 6, 2009

To the editor:

I would like to state my support for SB 32, which would provide annual rate reviews for local community-based services such as Fairbanks Resource Agency and their associated care-givers in our community.

Currently, hospitals and nursing homes have the advantage of rate reviews which help to stabilize and maintain quality care. Supporting and passing SB 32 would provide a just, fair and equitable process to insure the same for Fairbanks Resource Agency and those who provide, or need, these services. Supporting SB 32 would provide a reasonable assessment, i.e. yearly reviews.

There are no “short-term fixes” that can result in a fair and equitable solution other than passing this bill. Please support and pass SB 32.

Barbara L. Gorman, Fairbanks

Brain Injury Awareness Month 2009

Did you know March is Brain Injury Awareness Month? It is and each March the Brain Injury Association of America (BIAA) and the BIA chartered state affiliates throughout the United States partner together with other organizations, businesses, schools, survivors and their families and others to generate awareness and understanding of brain injury. This year’s focus is dedicated to Sports & Concussions, specifically youth sports.

Read more on find resources here..

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Advocates for disabled call on state for support

by Rhonda McBride
Wednesday, February 25, 2009

JUNEAU, Alaska -- When the Key Coalition comes to town, children with special needs fill the Capitol hallway, along with people in wheelchairs and with seeing-eye dogs.

The coalition goes to Juneau every year to raise awareness about people with disabilities and to improve services. They're hard to miss, yet their friends and family say they seem to miss out on a lot.

Advocates for people with developmental disabilities feel they have a hard time getting heard, but since the governor gave birth to Trig, her child with Down Syndrome, a lot has changed.

In her State of the State speech, Gov. Sarah Palin promised more support for children with special needs, such as giving more money to screen children with autism.

Those at a rally Wednesday worry that lawmakers don't understand what's at stake.

Hundreds of people with development disabilities are on waiting lists for services.

Read more of the story and watch the video here on KTUU.

View pictures of statewide rallys here.

In Turnabout, Children Take Caregiver Role

Partly paralyzed, with diabetes and colitis, Linda Lent needs extensive care at home.

But with her husband working long hours at a bowling alley, Ms. Lent, 47, relies on a caregiver who travels by school bus toting a homework-filled backpack: her 13-year-old daughter, Annmarie.

...

A 2005 nationwide study suggested that about 3 percent of households with children ages 8 to 18 included child caregivers. Experts say they expect the numbers to grow as chronically ill patients leave hospitals sooner and live longer, the recession compels patients to forgo paid help and veterans need home care.

Read more at nytimes.com

Social Security Caregiver Credit Act Reintroduced

On January 28, 2009, Representative Nita Lowey (D-NY) reintroduced the Social Security Caregiver Credit Act (H.R. 769).  The bill would allow unpaid family caregivers to claim Social Security benefits as if they had worked for a wage (according to a specified formula) during each month they were engaged for at least 80 hours in providing care to a dependent relative, for up to five years of such service.  The bill was introduced but not voted upon in the 110th Congress. 

For more information, visit: Thomas

Biden praises Special Olympics athletes

By REBECCA BOONE ASSOCIATED PRESS WRITER

BOISE, Idaho -- Vice President Joe Biden says that President Barack Obama is committed to programs designed to improve the livelihood of Americans with disabilities and special needs.

To demonstrate his point, Biden announced that Kareem Dale, a former member of Obama's campaign in charge of coordinating the vote of disabled Americans, has been named the special assistant to the president for disabilities policy.

Biden made the announcement to a small group of Special Olympics athletes, volunteers and coordinators Thursday afternoon. The vice president was in Boise to attend a portion of the Special Olympics World Winter Games with a presidential delegation including U.S. Education Secretary Arne Duncan and Olympic figure-skating medalists Scott Hamilton and Michelle Kwan.

"This is a civil rights movement," Biden said. "There's a need to have changes in policy."

The nation needs policy changes that will ensure Americans with disabilities can get and keep fulfilling jobs without worrying about losing government-funded health insurance or other assistance, Biden said. Advocates have long complained that programs like Social Security Disability Insurance, Supplemental Security Income, Medicaid and Medicare essentially force disabled workers to leave their jobs or prevent them from working so that they can qualify for the medical care they need.

Read More here in the Seattle PI.

Fairbanks - Public Transportation Survey

During either the last week in February or the first week in March Wallbusters (Fairbanks Advocacy Group) will be conducting a survey of the MACS routes.  The project will involve six teams riding several bus routes to determine how accessible the system is.  We hope to have each team composed of a minimum of four people representing people with vision, mobility, hearing and cognitive disabilities, accompanied by at least one non disabled individual. Each team will try to ride at least two routes.

The goal of the ride is to compile and present the finding to MACS and Van Tran in the hope we can make MACS an option to some Van Tran users currently have accessibility issues in using the public buses.

Bus Passes will be given the survey riders.

For more information or to participate contact Art or Cassie at 479-7940.

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Update - State assumes control of nursing home

February 12, 2009 - From the Public Information Officer at the Alaska Department of Health and Social Services Division of Public Health

All the entities concerned with the operation, ownership, and management of Mary Conrad Center, including the SOA, are continuing discussions with potential new owners. Should the need arise; the provisional license will be considered for extension.

December 24, 2008 - State grants Mary Conrad home temporary license

The owner of the embattled Mary Conrad Center has agreed to sell the home within 60 days, state health officials said Wednesday.

The health department seized control of the nursing home last Thursday after a five-day investigation, revoking its license and saying it posed an "immediate danger to the health, safety or welfare" of its roughly 90 residents.

The state found medication errors, unclean kitchens and residents with unattended injuries, among other problems, said Public Health Director Beverly Wooley.

December 19, 2008 - State assumes control of nursing home

More here

State health officials said today they are taking over a long-term care center in Anchorage due to the alleged "immediate danger to the health, safety or welfare" of its residents.

he 78-unit Mary Conrad Center was sold this year to RainDance Healthcare Corp. Inc., a Seattle company owned by a controversial former nursing home executive who had stints involving corporate lawsuits and bankruptcy.

State officials said they served a notice today of immediate license revocation to RainDance following the results of a recent inspection at the nursing home. They said revoking a license is a "rare step."

The inspection last week "revealed conditions which the state believed to present an immediate danger to the health, safety or welfare of individuals receiving services at the center," the state said. It provided no details of its inspection.

The state Department of Health and Social Services said it has brought extra staff to the center to manage it. RainDance will be able to appeal the license revocation.

Last year, the Cook Inlet Housing Authority decided to sell the center after it and Providence Health and Services could not agree on terms for renewal of Providence's lease agreement to run the center.

The proposed sale generated concern among some families who said they "Googled" the owner of RainDance, Andrew Turner, after the proposed sale was announced and worried about his past business history.

When Turner visited the center after the proposed sale was announced, he told residents and families that he planned no changes in staffing levels, employee benefits and services to residents.

Follow the story on ADN.

Goveronor Palin's FY 2010 Proposed Operating Budget

Now online at http://www.gov.state.ak.us/omb/10_omb/budget/index_FY10_Operating.htm

Anchorage - What to Expect of the ADA Amendments Act of 2008

What to Expect of the ADA Amendments Act of 2008

Anchorage - 1/5/09 - Two Sessions: 8:30 to 10:00 or 1:30 to 3:00

Effective January 1, 2009, this new law will expand coverage to at least 15 percent of Alaskans and promote greater access and reasonable accommodation in employment. A wider variety of people will qualify under the broader definition which will be further delineated in 2009. This briefing will outline decision making in advance of regulations, using pertinent guidance from the US Department of Justice and Equal Employment Opportunity Commission. Participants may include ADA Coordinators, state and department leads, legal professionals, human resource professionals, and business owners.

Prior to the briefing, participants should review the Amendments Act overview, ADA “Building Blocks” basics web course and an overview of the Genetic Information Nondiscrimination Act. State employees  should also review Administrative Order 129.

Registration (no-cost and open to the public)

State Employee Online Registration: https://dop.state.ak.us/trainalaskav2/. Select ADA-R for the Amendments Act.

Members of  the Public may contact Kathy Rado at 465-2814, Toll-Free Voice/TTY at 1 (800)478-2815 or E-mail at kathy.rado@alaska.gov. When registering, please provide name, organization, address, and telephone number.

Location

BP Energy Center, 900 Benson Blvd, Classroom C: Click for link to map

Equal opportunity employer/program.

Auxiliary aids and services available upon request to individuals with disabilities.

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States Cut Services for Elderly, Disabled

From the Wall Street Journal

As Budget Shortfalls Force Reductions in Home Care, Low-Income People May Face Nursing Homes, Advocates Say

Faced with widening budget shortfalls, several states are rolling back support services for the elderly and disabled. The move is making it tougher for them to continue living on their own, advocates say.

At least 15 states, including Alabama, Virginia and Massachusetts, are targeting such funding, mostly for programs that allow low-income shut-ins to receive personal care -- like cooking, cleaning and basic health services -- in their own homes, according to the Center on Budget and Policy Priorities, a liberal-leaning Washington, D.C. think tank that studies state budgets.

Read more here in the WSJ.

Read the report here.

Steve Gold on the Justice for All blog writes:

Advocates should be aware that if your state reduces its Medicaid home-care services, whether personal attendant care hours and eligibility, home health, number of prescriptions, other services, there may be ADA legal challenges available to stop these reductions.

Be on the look out in your state for:

1. Medicaid reductions that discriminate based on severity of disability so that reduced benefits will provide adequate services for persons with less severe impairments but not be adequate for persons with more severe disabilities.

2. Community-based Medicaid reductions without any significant reductions in the institutional expenditures. Think about how much Medicaid funds could be "saved" in your state by reducing the nursing home Medicaid per diem reimbursements by $3.00 a day. With 53.3% of the 1,153,601 nursing home residents paid by Medicaid, a $3.00 per day reduction could go a long way to resolving other budgetary reductions.

3. Medicaid reductions that force people, in order to survive, to have to go into an institution to receive the same services that they had been receiving in the community. People with disabilities of any age should not have to go into a nursing home in order to receive services!

4. Medicaid reductions that are not individually determined and therefore do not provide for flexibly applying "reasonable accommodations" to assess what services may be necessary to stay out of an institution.

5. Medicaid waiver reductions that are based on "individual" cost neutrality rather than "aggregate" cost neutrality.

6. Reductions and payments for services that do not recognize and take different levels of "need" into account, but instead lump all disabled persons into one need-category.

Have no doubt that, if your state officials think the disability and elderly advocates will take reductions in community-based services lying down, they will use the current economic climate as an excuse.

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World AIDS Day December 1AIDS

from www.bentalaska.com

Monday, December 1, marks the 20th anniversary of World AIDS Day, when individuals and organizations around the world come together to bring attention to the global AIDS epidemic. While we have come a long ways since 1988, there is still much more to be done to fight the disease and its stigma.
AIDS organizations in Anchorage and Fairbanks are holding candlelight vigils on Dec 1, along with celebrations of life.                                                 
Anchorage Paints the Town Red
On World AIDS Day, the Alaskan AIDS Assistance Association (Four A's) holds events and activities to create awareness and educational opportunities for the community. This year's theme is Paint the Town Red: Wear the Original Ribbon. They're distributing free red ribbons for everyone to wear on December 1.
Over 200 organizations and businesses will have cans full of free red ribbons beginning November 25. Check the list ofAnchorage locations and pick up your ribbons today. To have a paint can of ribbons at your business or organization, contact Chrissy at Four A's.
On Monday, Dec 1, join Four A's at the Alaska Wild Berry Theater (5225 Juneau Street) for the Annual World AIDS Day Candlelight Vigil at 6 p.m., and a free showing of Rentat 7 p.m., with live entertainment by TBA Theatre.
IAA Celebrates 20 Years in Fairbanks
On Dec 1, the Interior AIDS Association (IAA) is celebrating their 20th anniversary and World AIDS Day at the UAF Salisbury Theatre. The evening includes dance and theater performances and a speaker starting at 6:30 p.m., followed by a candlelight vigil at 8:30 p.m.

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The Obama-Biden Agenda on Disabilities

The Obama disability agenda is back online at change.gov. Here it is:

Barack Obama and Joe Biden have a comprehensive agenda to empower individuals with disabilities in order to equalize opportunities for all Americans.

In addition to reclaiming America's global leadership on this issue by becoming a signatory to -- and having the Senate ratify -- the UN Convention on the Rights of Persons with Disabilities, the plan has four parts, designed to provide lifelong support and resources to Americans with disabilities. They are as follows:

First, provide Americans with disabilities with the educational opportunities they need to succeed by funding the Individuals with Disabilities Education Act, supporting early intervention for children with disabilities and universal screening, improving college opportunities for high school graduates with disabilities, and making college more affordable. Obama and Biden will also authorize a comprehensive study of students with disabilities and issues relating to transition to work and higher education.

Second, end discrimination and promote equal opportunity by restoring the Americans with Disabilities Act, increasing funding for enforcement, supporting the Genetic Information Nondiscrimination Act, ensuring affordable, accessible health care for all and improving mental health care.

Third, increase the employment rate of workers with disabilities by effectively implementing regulations that require the federal government and its contractors to employ people with disabilities, providing private-sector employers with resources to accommodate employees with disabilities, and encouraging those employers to use existing tax benefits to hire more workers with disabilities and supporting small businesses owned by people with disabilities.

And fourth, support independent, community-based living for Americans with disabilities by enforcing the Community Choice Act, which would allow Americans with significant disabilities the choice of living in their community rather than having to live in a nursing home or other institution, creating a voluntary, budget-neutral national insurance program to help adults who have or develop functional disabilities to remain independent and in their communities, and streamline the Social Security approval process.

Fairbanks - DART Meeting

Thursday, Nov 20 at 2:00 p.m. at Access Alaska, 526 Gaffney

Call Loraine at Access Alaska, 479-7940 to participate by teleconference.

The DART Team (Disability Abuse Response Team) was established in Fairbanks to better assist individuals with disabilities or otherwise vulnerable adults with abuse situations. The DART team is comprised of multiple interested agencies in the interior that can help with intervention in a time of need or safety.

Please Bring Any information to start planning the tri-fold Card for the Fairbanks Police.

Please join us on Thursday. See you there!

Obama's Plan to Empower Americans with Disabilities

From the Office of the President-Elect:

“We must build a world free of unnecessary barriers, stereotypes, and discrimination .... policies must be developed, attitudes must be shaped, and buildings and organizations must be designed to ensure that everyone has a chance to get the education they need and live independently as full citizens in their communities.”

— Barack Obama

Barack Obama and Joe Biden have a comprehensive agenda to empower individuals with disabilities in order to equalize opportunities for all Americans. In addition to reclaiming America's global leadership on this issue by becoming a signatory to -- and having the Senate ratify -- the UN Convention on the Rights of Persons with Disabilities, the plan has four parts, designed to provide lifelong supports and resources to Americans with disabilities. They are as follows: First, provide Americans with disabilities with the educational opportunities they need to succeed. Second, end discrimination and promote equal opportunity. Third, increase the employment rate of workers with disabilities. And fourth, support independent, community-based living for Americans with disabilities.

Read more at www.change.gov

Will They Feel the Power of the Disability Vote? VOTE TOMORROW!

From Justice for All

We need to make sure to let our politicians know that people with disabilities are a force to be reckoned with.  As an action of solidarity as a community, we are asking that all people, no matter what your disability status, to vote on the accessible machine at your polling place. Vote buttonIn this time of financial uncertainty, programs for people with disabilities are being cut. Do you want to to make sure IDEA is fully funded? Do you want the ADA to be enforced? Do you want people with disabilities to be fully covered by Medicaid and Medicare? Make sure to vote for these issues and ensure you know where the candidates stand on them. If you are prevented from voting because of lack of access or if have problems at the polls for any reason, get help by calling 1-866-OUR-VOTE (687-8683).

 
Vote Tips
Make a Plan
  • KNOW YOUR RIGHTS: if you require assistance to vote, you have a right to choose any person you want (except your employer) to assist you--including friends or family who are not election officials.
  • Double check your polling place locations available at www.vote411.org
  • Pre-arrange rides and/or transportation to the polls. 
  • Many states require photo ID, make sure to bring yours when you head to the polls. For a state by state listing of Identification Requirements click here
  • Confirm you are registered before going to vote by calling your local elections office.  You an find the numbers for your county's election office at www.votesmart.org
Make it Fun
  • More people will be voting on Tuesday than ever before. Be prepared for a long wait, but don't let this stop you from making you're voice heard. Instead celebrate civic engagement with your fellow citizens and party at the polls. 
  • If you do not normally bring a chair with you, bring a lightweight folding chair.
  • Dress comfortably and appropriately for the weather where you live. 
  • Bring food and drink to snack on and a book, music or games to pass the time. 
  • Get to know your neighbors: Find out what issues are important to them and be prepared to share what issues affect you as a member of the disability community. 
Make it Count
  • Don't leave without voting: All states have recourse for voters without ID to vote.
  • If you are told that your name isn't in the poll book, your first course of action should NOT be to accept a provisional ballot.  First ask the poll worker to double check your voting location. Many states require that in order for a provisional ballot to be counted it MUST be cast in the correct polling place, so if you take that provisional ballot as your first course of action and you are in the wrong polling place it might not count.
  • If you are in line at the polls and it is closing time, you still can vote. So don't let anyone dismiss you before you exercise your right. 
Make it Right
  • Lack of access, voter Intimidation and misinformed poll workers prevent citizens from voting in every election.   Don't let this happen to you.
  • People across the country face lack of access because there is inadequate accessible parking or the poll workers don't know how to use the accessible machines.  This is a violation of your rights and needs to be reported.
  • Intimidating voters takes many forms from videotaping or asking inappropriate questions of voters in a polling place, to placing heavily armed police outside poll sites, and distributing threatening flyers announcing the penalties for voting fraud.
  • If you have ANY problems report them to 1-866-OUR-VOTE (687-8683)

November 4 - VOTE

Career Fair - Anchorage

People With Disabilities
Career Fair for Federal Employment

October 31, 2008

BP Energy Center
900 E. Benson
Anchorage, AK

10am - 3:30pm

For more information call Jim Hollibaugh
907-271-4196

Sponsored by Anchorage People First
www.pfanchorage.org

A Web Guide To Wheelchair & Assistive Technology Choices

A Web Guide to wheelchair and assistive technology choices, views and reviews on wheelchairs, and related information and articles.

http://www.usatechguide.org/

From United Spinal Association.

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Anchorage - Voting Technology Open House

Access Alaska and the Division of Elections invite you to an open house to learn more about accommodations to assist voters who experience disabilities.

Voting equipment will be available to try out.

For more information, please contact
Jill Coddington at 248-4777.

October 27, 2008
4:30 – 6 PM
Access Alaska
121 W. Fireweed Lane Suite #120

As seen on AnchorRIDES

You see a wheelchair - We see an Engineer

House Passes ADA Amendments Act, Bill Heads to White House for Signature

Just after noon today, the U.S. House of Representatives passed the ADA Amendments Act as passed by unanimous consent last Thursday by the Senate.

The bill is now headed to the White House where Congressional champions and advocates anticipate President Bush's signature next week.

50 Arrested as ADAPT Takes Affordable, Accessible Housing Crisis to Congress

ADAPT Press Releases
For Immediate Release 
September 17, 2008

50 Arrested as ADAPT Takes Affordable, Accessible Housing Crisis to Congress

For information contact; 
Randy Alexander (901) 359-4982
Marsha Katz (406) 544-9504
http://www.adapt.org
http://www.duhcity.org

Washington, D.C.---From their base at “DUH City”, groups of ADAPT activists fanned out on the Hill to hit congressional leaders who have responsibility to help solve the housing crisis for low income people with disabilities. Visits to the offices of Rep. Barney Frank (D, MA), a longtime leader on housing issues, and Senators Chris Dodd (D, CT) and Richard Shelby (R, AL), the Chair and ranking Member of the Senate Committee on Banking, Housing and Urban Affairs resulted in a total of 50 arrests.

“Our first stop was to see Rep. Barney Frank,” said Diane Coleman of ADAPT in Rochester, New York. “ADAPT has been in talks with him over the past year, and early on he told us in no uncertain terms that he could get 500 housing vouchers from HUD that would be targeted to free people with disabilities who live in nursing homes and other institutions. He repeated that promise for months, and we kept trusting his word, and then one day he suddenly says he can’t help us. We were also working with him to get funding that pays for segregated housing redirected to support integrated housing and more vouchers. Sen. Frank arranged a hearing on this funding, and not only did he not invite any people with disabilities to testify, he didn’t even notify us about the hearing. So, today, we decided to confront him on his broken promises and bad faith.”

Shortly after 13 ADAPT members entered Franks’ office, he ordered staff to have them arrested, refusing to even discuss th e ADAPT concerns, or strategies to address the housing crisis for low income people with disabilities trapped in institutions for lack of affordable, accessible, integrated housing.

ADAPT went to the offices of Dodd and Shelby because HUD and housing fall under the purview of their committee. Sen. Shelby declined to work with ADAPT saying, “I don’t help people who can’t help themselves.” There were 19 arrests made in Shelby’s office. An aide to Sen. Dodd spoke with ADAPT, but declined to put her remarks on paper after indicating she might be willing to do so. ADAPT continued to wait for the written statement, and eventually nearly 25 people were arrested.

“The TV is full of news about the bank crisis, and the mortgage crisis, and the need for candidates to appeal to middle income people,” said Cassie James, Philadelphia ADAPT organizer. “Meanwhile, people who live on disability benefits, and people who are trapped in nursing homes because of no housing are being held hostage while the governm ent bails everyone else out. Rent has gone up so much, it’s higher than many monthly disability benefits. Not only do us younger people with disabilities need affordable, accessible housing, older people need it, too. This is a crisis, and we need help to solve it.”

ADAPT has been in D.C. since September 13, erecting DUH City, a tent city, on the plaza outside HUD headquarters to bring attention to the situation of the people who have been ignored in this election year- low income people with disabilities. The crises with the economy and housing extend well beyond the middle class, but the Presidential candidates and their parties have seemingly forgotten that fact. Not so, ADAPT.


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Parent workshop - Fairbanks

Parents of students with special needs are invited to a workshop in the School District Board Room this Saturday.

Know your rights as a parent. Learn how to ask for accommodations in the general classroom.

Learn how to participate in an effective Individual Education Plan meeting.

The Parent Advocacy Group sponsored by Access Alaska is teamed with Fairbanks North Star Borough School District Special Education Department to provide the two-hour workshop.     

The workshop runs from 10 am to noon, this Saturday, September 20th.

Childcare will not be provided.

For information:Contact Erin Atwood at 347-7549,  or Art Delaune at 479-2838 or 479-7940.

DART Meeting - Fairbanks

Thursday, Sept, 25 at 2:00 p.m. at Access Alaska, 526 Gaffney

Call Loraine at Access Alaska, 479-7940 to participate by teleconference.

The DART Team (Disability Abuse Response Team) was established in Fairbanks to better assist individuals with disabilities or otherwise vulnerable adults with abuse situations. The DART team is comprised of multiple interested agencies in the interior that can help with intervention in a time of need or safety.

Please join us on Thursday. See you there!

ADAPT Update

This update from Bob Kafka, National Organizer of ADAPT (3:58 PM, ET):

Civil Rights done in a different way. 500 ADAPT activists have set up DUH City on the HUD Plaza in DC. WITHOUT A PLACE TO LIVE IT IS HARD TO GET A JOB. Low income people with disabilities are about 15 percent of medium income. ADAPT has developed a housing platform that they want Obama and McCain to endorse.

As I write this ADAPT activists are being arrested in Sen McCain's office as he refused to accept the platform.  Earlier in the day DNC officials accepted the ADAPT Platform.

8 arrested in McCain Presidential Campaign Headquarters, 3 outside the Headquarters.

INCLUSION, INTEGRATION INDEPENDENCE

Community First!

The ADAPT Community www.duhcity.org

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ADAPT in Washington

Multimedia message on TwitPic

The 2008 election campaigns have included rhetoric about tax breaks for middle income families, and media coverage has included stories about families who have children with disabilities.

Left out of all the election rhetoric are the candidates’ positions on and commitments to those babies with disabilities who grow into adults with disabilities who all-too-often survive on extremely low incomes (less than 30% of the median income). These extremely low incomes are often the fixed benefit amounts of SSI and Social Security.

In 2006, according to Priced Out in 2006, the federal SSI benefit was $603/month and the average cost nationally of renting a studio/efficiency apartment was $633/month.

There are not enough AFFORDABLE, ACCESSIBLE, INTEGRATED housing units to handle the current demand in communities across America. When the Community Choice Act (S 799, H.R. 1621)  passes, and older and disabled people can choose to live in their own homes instead of being forced into nursing homes and other institutions, the need for affordable, accessible housing will increase. And as the baby-boomers continue to age, the demand will grow exponentially.

HUD, Congress and the Administration have broken promises, cut funding for housing stock and housing subsidies and enforcement of anti-discrimination housing laws, and simply ignored the nation’s low-income people with disabilities altogether.

ADAPT has established “DUH City” (reverse of HUD) to bring attention to and document the struggle of low income people with disabilities. When the average rent for even an efficiency apartment is more than your monthly income……where do you wind up? All too often you’re forced out on the street or into a nursing home or other institution.  DUH!

From ADAPT
And www.duhcity.org
Follow ADAPT on Twitter http://twitter.com/NationalADAPT

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SENATE PASSES ADA AMENDMENTS ACT!

BREAKING NEWS

At approximately 3:00 PM, ET today, Senate bill S.3406, the ADA Amendments Act of 2008, was brought to the Senate floor for a voice vote. Shortly before 5:00 PM, it passed by unanimous consent!

At approximately 5:30 PM, ET, Senators Tom Harkin (D-IA) and Orrin Hatch (R-UT) will hold a press event at the Senate Swamp (the grassy area across the drive from the east Senate steps) to mark the momentous event.

In June, the House approved the ADA Amendments Act of 2008 (H.R. 3195) by an impressive vote of 402:17. 

But before the bill can head to the White House, the Senate bill must first be sent back to the House. If the House accepts the Senate version of the bill, it could arrive on the President's desk with a veto-proof majority! Stay tuned.

Congratulations, advocates! Your persistent push got us here today!

From http://adarestoration.blogspot.com

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Event will help veterans in need - Fairbanks

FAIRBANKS — Military veterans are invited to participate in Stand Down, an event that offers a variety of services, at Pioneer Park on Saturday.

The event targets veterans in need, said organizer Nancy Smoyer, although all non-active-duty veterans are invited to attend. The free event offers medical, dental and optical services, along with tax information, legal assistance, employment help and more. A free breakfast and lunch also will be served.

The event will be from 8 a.m. to 3 p.m., and also will include door prizes and live music. About 400 people have attended Stand Down in recent years, Smoyer said.

Those attending the event should bring a veterans’ identification. For more information, call the veterans’ center at 456-4238.

From the Daily Newsminer.

Access Alaska will be there.

Tropic Thunder Responses

Great clip from the Autistic Self-Advocacy Network.

We've come so far over the years; we've branded an institution, empowered countless families and brought hope to a seemingly "hopeless" situation. Let's right one more wrong. Ban the R-word. Ban the movie. Take a stand. Make a difference. More from Tim Shriver here.

Dreamworks to Meet With Disability Groups

List of various news stories here.

We, as organizations and self-advocates representing members of the disability community, recognizing the dignity of individuals with intellectual disabilities, the challenges they and their families face, and the meaningful and powerful contributions they make to their families, their communities, and their country...
Read Coalition Statement of Support and Solidarity on the Special Olympics website.

THE ARC OF ANCHORAGE CONDEMNS NEGATIVE DEPICTION OF PEOPLE WITH INTELLECTUAL DISABILITIES IN FILM “TROPIC THUNDER”

[Anchorage, AK] – The Arc of Anchorage announced a campaign to address the portrayal of an individual with an intellectual disability in the movie “Tropic Thunder” which opened nationwide this week. The Arc of Anchorage joins the efforts of The Arc of the United States and other national advocacy groups mobilizing around the use of hate-speech in referring to persons with intellectual disabilities. “Tropic Thunder” features Ben Stiller portraying “Simple Jack,” a person with an intellectual disability; this character is repeatedly referred to as a “retard,” “moron,” and “imbecile.”

The Arc of Anchorage is marshalling people with intellectual disabilities, their families, self-advocates, members and other stakeholders to establish a presence around the movie theaters where the film is being shown. “We are urging the general public not to spend their hard-earned money on this film because of its deplorable and demeaning view of a person with intellectual disabilities,” said Gwen Lee, Executive Director of The Arc. “This is an opportunity to educate our neighbors about the rights of people with disabilities – most importantly to live with the same dignity afforded every ordinary American,” added Gwen Lee.

Fay Peace, a self-advocate, said, “As a person with an intellectual disability, I have been called the R-word in my life. I live and work in the community and treat everyone I meet with respect. I deserve that same respect. Movies that disrespect me and my rights should not be supported. ‘Tropic Thunder’ is supposed to be a comedy, but there is nothing funny about putting down people with disabilities.”

A Rally for Respect will happen on Saturday, August 16 at 1 pm at the Anchorage theaters currently screening the movie (Century 16 and Totem Theater). Organizers and advocates will be distributing flyers on the R-word and hate speech, along with other educational materials.

Get the press kit here.

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SIGN ON! Joint Letter to the Senate in Support of ADA Amendments Act (S.3406)

What follows below is a letter for the Senate supporting the new Senate version of the ADA Amendments Act of 2008 (S. 3406) and its passage this year. This letter is being distributed for sign-on to ALL the employer, disability, civil rights, faith-related, health, veterans, and other organizations that supported the ADAAA.

To sign on your organization's support of this joint letter, enter your name on the ADABill.org website.

Sign on as soon as possible but absolutely no later than close of business on Friday, August 15.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

The following letter will be distributed to Senators on behalf of the hundreds of organizations committed to securing the promise of the ADA.

Dear Senator,

The undersigned groups, representing a broad range of interests, write in support of the ADA Amendments Act of 2008 (S.3406). This bill introduced on July 31, 2008, had 64 cosponsors as of August 1, with 55 of those joining as original cosponsors.

S.3406 would revise the ADA in a manner designed to work for both people with disabilities and for entities governed under the law. The bill is a result of sustained efforts between Senators from both sides of the aisle and intensive and thoughtful talks between representatives of the disability community and entities governed by the law. For that reason, we believe that S.3406 strikes a delicate balance between the needs of individuals with disabilities and the realities experienced by entities including employers and public accommodations, which are covered under the law.

We urge your support in making enactment of S.3406, the ADA Amendments Act, a reality as soon as Congress returns in September. We stand ready to work with you towards that end.

Sincerely,

[your organization added here]

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Support the ADA Amendments Act in the Senate!

 ADAWatch.org National Coalition for Disability Rights 601 Pennsylvania Avenue, NW, Suite 900S Washington, DC 20004

Senate ADA Amendments Act Introduced with 57 Co-Sponsors
 
Senators Harkin and Hatch have introduced the ADA Amendments Act - S. 3406 - with 57 original cosponsors!  
 
While we will have to work hard to gain even more support in the Senate, ADA Watch and the National Coalition for Disability Rights (NCDR) thanks the state and local organizers and thousands of grassroots supporters who took part in our Road To Freedom bus stop events to support restoration of the ADA; signed our petition; attracted widespread media attention to the need for restoration; and utilized our ADA Restoration Action Center to send thousands of messages calling on Congress to respond to the narrowing of the ADA in the courts.
 
While there is more that we will have to do next year to restore the ADA, we fully support passage of the ADA Amendments Act.
 
The ADA Amendments Act of 2008 will restore the civil rights of people with disabilities by:
 
• Specifically rejecting restrictive interpretations by the Supreme Court that have reduced the protections for people with disabilities under the ADA
• Directing that the definition of "disability" must be construed broadly, to cover anyone who is discriminated against on the basis of disability.
• Clarifying the definition of disability, to more clearly prohibit discrimination against people with physical or mental impairments.
• Prohibiting consideration of an individual's ability to mitigate the effect of a disability (e.g., by taking medications) in determining whether she is eligible for protection from discrimination.
• Covering individuals who experience discrimination based on a perception that they have an impairment regardless of whether they have a disability.
 
Here is the list of origional co-sponsors of the Senate ADA Amendments Act: Harkin, Hatch, Kennedy, Enzi, Specter, Obama, McCain, Dodd, Dole, Gregg, Clinton, Alexander, Johnson, Roberts, Kerry, Coleman, Feingold, Snowe, Leahy, Burr, Brown, Smith, Durbin, Murkowski, Lautenberg, Warner, Sanders, Brownback, Reed, Martinez, Mikulski, Isakson, Casey, Craig, Murray, Bennett, Landrieu, Collins, Biden, Allard, Nelson, Sununu, Cardin, Thune, Levin, Barrasso, McCaskill, Crapo, Schumer, Stevens, Salazar, Voinovich, Tester, Cochran, Reid, Luger, Chambliss.
 

If your both your senators are not on this list, contact them and ask them to support the ADA Amendments Act of 2008. If one or both of your senators are co-sponsors, call them and thank them for supporting the civil rights of people with disabilities.

Right-click here to download pictures. To help protect your privacy, Outlook prevented automatic download of this picture from the Internet.

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Americans with Disabilities Act: 18th Anniversary celebration

Thursday, August 7, 5-8 p.m.
Snow Goose Theater
717 West Third Avenue
Anchorage

ADAPlease join special guest, the Honorable Olegario "Ollie" D. Cantos VII, Esq., Special Counsel to the Acting Assistant Attorney General for Civil Rights, U.S. Department of Justice, for an evening of conversation, friends and good food to celebrate the passage of this important civil rights act.

This event is sponsored by Access Alaska, UAA Disability Support Services, UAA Center for Human Development, The Disability Law Center, The Alaska Center for the Blind & Visually Impaired, The State of Alaska Americans with Disabilities Act Coordinator's Office, Assistive Technology of Alaska, The Govenor's Council on Disabilities & Special Education, Stone Soup Group, Municipality of Anchorage - ADA Commission and Frontier Community Services.

For more information, contact Doug Toelle at Access Alaska (800) 770-7940.

Disability rights protestors force meeting with Bush Administration

Jim Kreatschman, Access Alaska Interior Director (second from right with the legs) outside the RSA

PRESS RELEASE

For more information:

Kelly Buckland (208) 869-4135
Shannon Jones (913) 486-4565
Brad Williams (518) 424-8121

Disability rights protestors force meeting with Bush Administration

WASHINGTON, DC (July 23, 2008)
Over 200 disability rights advocates from across the country protested outside the U.S. Rehabilitation Services Administration (RSA) located at Potomac Center Plaza.

The boisterous group chanted until the Assistant Secretary of OSERS, Tracy Justesen, came down and agreed to meet with a delegation from the National Council on Independent Living (NCIL). The NCIL delegation presented the memberships demands to the Assistant Secretary.

Specifically at issue is RSA’s recent interpretation of the Rehabilitation Act and the negative impact it will have on the operation of Statewide Independent Living Councils (SILC’s). Despite years of accepted operation, RSA has limited the scope of councils so that they function according to minimum statutory duties.

“In Kansas, by advocating for public policy issues, we have increased the employment rate for people with disabilities by 20%,” stated Shannon Jones of Topeka, Kansas. “These types of advocacy efforts are being thwarted by RSA’s narrow interpretation of SILC duties. Once again, people with disabilities will be marginalized because of bureaucratic nonsense.”

After meeting for more than an hour, RSA agreed to respond in writing to NCIL’s demands. While NCIL looks forward to their response, they are concerned about how these restrictions will continue to impede policy related to people with disabilities.

International Agreement on the rights of disabled people (Easy Read Version)

The opening keynote at last week's NCIL Conference was Ecuador's U.S. Ambassador, Hon. Luis Gallegos. He headed the U.N. committee that produced this document, and as such, was its primary author. He spoke passionately about the need for international protections for people with disabilities, and what an incredible process it was to produce this convention. His long and distinguished career with the U.N. has focused on disability issues - this is his crowning achievement. He has been recognized by several groups for his work, including the great Chicago CIL, Access Living.

Sadly, our own President Bush has thus far refused to sign the convention. Yet we march on!

Easy read version is available here;.
Full version is available here

Access Alaska at NCIL


DSC00621
Originally uploaded by Civil Rights
Can you spot the soggy Alaskan's in this picture?

Radio Host Michael Savage Calls Children with Autism: "Just Brats"

From The New York Times (July 22):

Savage Stands by Autism Remarks By JACQUES STEINBERG

Michael_savage Michael Savage, the incendiary radio host who last week characterized nearly every child with autism as “a brat who hasn’t been told to cut the act out,” said in a telephone interview on Monday that he stood by his remarks and had no intention of apologizing to those advocates and parents who have called for his firing over the matter...

...

...On the July 16 installment of his program, which is broadcast every weekday, Mr. Savage suggested that “99 percent of the cases” of autism were a result of lax parenting...

...Read the entire article (free registration may be required).

...Read a related article.

---------------

TAKE ACTION!

Not only did Michael Savage claim that children with autism are a fraud, he used offensive language, referring to them as "idiots," "morons," and "brats."

Let's send a message to Michael Savage, his talkshow, and all his syndicators and commercial supporters. Tell them that people with disabilities, including children with autism, make up 1 in 5 Americans, and that his comments are inaccurate, offensive, and tantamount to hate speech. Encourage sponsors to pull their advertising dollars. Tell broadcasters that this sort of hate-filled rant is unacceptable.

Michael Savage michaelsavage@paulreveresociety.com

Talk Radio Network P.O. Box 3755 Central Point, Oregon 97502 Phone: 541-664-8827 Fax: 541-664-6250

The Savage Nation The Paul Revere Society 150 Shoreline Hwy, Bldg E Mill Valley, CA 94941 Fax: 415-339-9383

Buckley Broadcasting/WOR Radio General Phone Number: 212 642 4500 111 Broadway 3rd Floor, New York, NY 10006

Home Depot public_relations@homedepot.com (770) 384-4646

Sears Sears Public Relations And Communications (847) 286-8371 contact through their website: http://www.searsmedia.com/tools/inquires/feedback.htm

Radioshack Media Relations_ Riverfront Campus _Mail Stop #CF7-130_300 RadioShack Circle _Fort Worth, TX 76102-1964_ Phone: (817) 415-3300_ Fax: (817) 415-2585_ E-mail: media.relations@RadioShack.com

AFLAC 1-800-99-AFLAC (1-800-992-3522) Laura Kane, 2nd Vice President External Relations Aflac Incorporated_1-706-596-3493 Mechell Clark_ Media Relations Manager_ 1-706-243-8004 news@aflac.com

Budweiser Anheuser-Busch, Inc. One Busch Place St. Louis, MO 63118 Email through their site: http://contactus.anheuser-busch.com/contactus/email.asp 1 800 DIAL BUD (1 800 342 5283)0

From Justice for All Blog

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Hundreds with Disabilities March for Rights in D.C., Rain or Shine

With estimates of over 700 in participation, the annual march and rally of the National Council on Independent Living (NCIL) from the Grand Hyatt Regency to the U.S. Capitol reflecting pool was both loud and proud,... and at times quite wet!

March here for more.

Access Alaska was there, were you?

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ADA Restoration: Frequently Asked Questions (FAQs)

From the AADP, Questions answered about the ADA Amendments Act of 2008. Read them here.

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Historic Presidential Forum Unites Thousands in Disability Community

WASHINGTON, July 10, 2008 /PRNewswire-USNewswire via COMTEX/ ----Forum to be Held on 18th Anniversary of Landmark Americans with Disabilities Act

Thousands of Americans with disabilities from across the country will join together at The National Forum on Disability Issues, a non-partisan presidential forum organized by the Ohio Disability Vote Coalition (ODVC) and the American Association of People with Disabilities (AAPD) from 12:30 to 3:30 p.m. Saturday, July 26, in Columbus, Ohio.

AAPD is the largest cross-disability membership organization in the country. ODVC, a political advocacy collaborative, includes nearly 30 organizations from throughout Ohio that represent the interests of people with disabilities.

The forum will feature time slots for presidential candidates Barack Obama and John McCain to present their visions for the future of disability policy in America to this influential voting bloc -- more than 40 million people with disabilities are eligible to vote in the U.S. Questions will be posed to the candidates by the forum moderator, news anchor and journalist Judy Woodruff ("The News Hour with Jim Lehrer").

The presidential candidates are invited to address their disability policy positions on employment, healthcare, long-term services and supports, housing, transportation, technology and education -- all vital issues to people with disabilities.

"People with disabilities and our family members represent a huge percentage of the voting population and we respond to candidates who address our issues," said Andrew Imparato, President and CEO of the American Association of People with Disabilities. "This forum is a golden opportunity for Senators McCain and Obama to speak directly to an important segment of the electorate that can make a difference for either candidate in November."

More than 70 national, regional and state disability-related organizations, veterans groups and individuals are co-sponsoring the forum and will be represented at the forum. A full list of sponsors is available on the AAPD website at http://www.aapd.com.

The forum, the premier disability event of this election cycle, will also be simulcast on the web by Disaboom.com to tens of thousands across the country, many of whom plan to hold viewing parties in their communities. People with disabilities in Ohio unable to attend the forum and without Internet access will be able to participate via a live audio broadcast by Ohio radio reading services.

The forum is also a celebration of the 18th anniversary of the signing of the Americans with Disabilities Act (ADA), landmark civil rights legislation that has helped to transform the lives of the more than 50 million Americans who have disabilities. The forum comes on the heels of the historic June 25 House passage of the ADA Amendments Act of 2008 (H.R. 3195), which will overturn four Supreme Court decisions that have inappropriately narrowed the protections of the ADA.

There is no charge to attend The National Forum on Disability Issues on July 26 and it is open to the public, but registration is required. To register, visit http://www.govoter.org/presidential_forum/index.aspx. Questions about registration should be directed to aapdanne@earthlink.net.

The forum will be held at the Conference & Technology Center, First Church of God, 3480 Refugee Rd., Columbus, Ohio.

For more information about the forum visit the AAPD website, http://www.aapd.com.

The American Association of People with Disabilities (AAPD), the country's largest cross-disability membership organization, organizes the disability community to be a powerful voice for change - economically, politically, and socially. AAPD was founded in 1995 to help unite the diverse community of people with disabilities, including their family, friends and supporters, and to be a national voice for change in implementing the goals of the Americans with Disabilities Act (ADA). To learn more, visit the AAPD website: http://www.aapd.com.

SOURCE American Association of People With Disabilities

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Statement of Senator Barack Obama on the House Passage of the Americans with Disabilities Restoration Act

Wednesday, June 25, 2008
FOR IMMEDIATE RELEASE
CONTACT: Michael Ortiz, 202 228 5566

WASHINGTON, D.C. - U.S. Senator Barack Obama today released the following statement after the House of Representatives passed the Americans with Disabilities Restoration Act, H.R. 3195.

"We have a collective responsibility to ensure that every American has access to the opportunity to fulfill their dreams and live independent lives. With nearly fifty-four million Americans living with disabilities today, it must be a priority for our government to do everything it can to protect and respect the needs of these Americans.

"The House of Representatives took an important step today by passing this legislation, and I applaud Leader Hoyer and Congressmen Conyers, George Miller, and Sensenbrenner for their efforts. I look forward to working with a true leader on this issue, Senator Harkin, to reaffirm our nation's commitment to giving every American an equal chance."

Ohio Bill adds disability to hate crime law

State Sen. Eric Kearney (D-Cincinnati) is introducing a bill that would grant people with disabilities protection under Ohio's hate crime law.

Senate Bill 349 was prompted by February's attack of Ashley Clark, a mentally disabled Talawanda High School senior.

"Anyone can become disabled ... I think people realize that it's a great equalizer," Kearney said Friday.

"Most families have somebody, a relative, who is disabled and people will empathize with that."

Hate crime laws provide additional punishment for criminal offenses if the crime can be shown to be motivated by race or animosity toward specific groups of people.

If the bill is passed, it would put disability in the same category as race, color, religion, and national origin.

"This will put people on notice that the state of Ohio views those actions with the same severity as they do crimes against any other group," said Lin Laing, executive director for Center for Independent Living Options in Cincinnati.

Kearney is a member of the center's board of directors.

Ohio is one of 23 states that do not include disability as part of their hate crimes legislation, according to the National Conference of State Legislatures.

Does Alaska? Read more here on Cincinnati.com

House Votes to Expand Civil Rights for Disabled

Published: June 26, 2008

WASHINGTON — The House passed a major civil rights bill on Wednesday that would expand protections for people with disabilities and overturn several Supreme Court decisions issued in the last decade.

The bill, approved 402 to 17, would make it easier for workers to prove discrimination. It would explicitly relax some stringent standards set by the court and says that disability is to be “construed broadly,” to cover more physical and mental impairments.

Supporters of the proposal said it would restore the broad protections that Congress meant to establish when it passed the Americans With Disabilities Act that President George Bush signed in 1990.

Lawmakers said Wednesday that people with epilepsy, diabetes, cancer, cerebral palsy, multiple sclerosis and other ailments had been improperly denied protection because their conditions could be controlled by medication or were in remission. In a Texas case, for example, a federal judge said a worker with epilepsy could not be considered disabled because he was taking medications that reduced the frequency of seizures.

In deciding whether a person is disabled, the bill says, courts should generally not consider the effects of “mitigating measures” like prescription drugs, hearing aids and artificial limbs. Moreover, it adds, “an impairment that is episodic or in remission is a disability if it would substantially limit a major life activity when active.”

The chief sponsor of the bill, the House Democratic leader, Representative Steny H. Hoyer of Maryland, said the situation was now bizarre. “An individual may be considered too disabled by an employer to get a job, but not disabled enough by the courts to be protected by the A.D.A. from discrimination,” Mr. Hoyer said.

The chief Republican sponsor, Representative F. James Sensenbrenner Jr. of Wisconsin, said the Supreme Court had “chipped away at the protections” of the 1990 law, leaving millions of Americans with no recourse or remedy for discrimination.

His wife, Cheryl Sensenbrenner, has testified in support of the bill as chairwoman of the American Association of People With Disabilities, an advocacy group. Mrs. Sensenbrenner suffered a spinal cord injury in 1972, when she was 22, and sometimes uses a wheelchair. In addition, she noted in an interview, she has a sister with Down syndrome.

Supporters of the bill immediately shifted their attention to the Senate, which is expected to pass a similar bipartisan measure. Senator Tom Harkin, the Iowa Democrat leading the effort, predicted that the Senate would act “in the near future.”

The White House said that although President Bush “supports the overall intent” of the House bill, he was concerned that it “could unduly expand” coverage and significantly increase litigation.

The House bill reflects a deal worked out in months of negotiations by business groups and advocates for the disabled. The United States Chamber of Commerce and the National Association of Manufacturers helped shape the bill and endorsed it as a balanced compromise.

Representative Jerrold Nadler, Democrat of New York, called the Supreme Court reading of the 1990 law “cramped and misguided.” Remedial legislation is needed now more than ever, Mr. Nadler said, because “thousands of men and women in uniform are returning from Iraq and Afghanistan with serious injuries, including the loss of limbs and head trauma.”

The House Republican whip, Representative Roy Blunt of Missouri, said the bill “puts people to work, creates opportunity and makes America a more productive country” by unlocking new pools of talent.

The 1990 law said “individuals with disabilities are a discrete and insular minority.” The bill passed Wednesday deletes that phrase, which the Supreme Court has cited as a reason for limiting the definition of disability.

The law generally prohibits an employer from discriminating against a qualified individual who has, or is perceived as having, a disability, defined as a physical or mental impairment that “substantially limits” one or more major life activities.

The Supreme Court said in 2002 that “these terms need to be interpreted strictly to create a demanding standard for qualifying as disabled.” To meet this test, the court said, a person has to have “an impairment that prevents or severely restricts the individual from doing activities that are of central importance to most people’s daily lives.”

Under the bill passed on Wednesday, Congress would establish a less stringent standard, saying an impairment qualifies as a disability if it “materially restricts” a major life activity like seeing, hearing, eating, walking, reading or thinking.

Article here.

Much more info at the Justice For All blog.

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SPECIAL 2 HOUR SESSION – ADA AUDIO CONFERENCE SERIES

The Network of Regional ADA Centers is pleased to announce a special session of the ADA Audio Conference Series which will provide an opportunity for individuals and entities to learn more about the Proposed revisions to the ADA Regulations under Title II and III.

WHEN:  Tuesday, July 8, 2008

TIME:  1-3pm Central (11am-1pm Pacific, 12-2pm Mountain, 2-4pm Eastern

TITLE:  Ask DOJ: Proposal to Revise ADA Regulations under Title II and Title III

DESCRIPTION:  On June 17, 2008 the U.S. Department of Justice, Civil Rights Division published the long awaited proposed regulations to revise the Department's ADA regulations for State and local governments and public accommodations and commercial facilities, including its ADA Standards for Accessible Design.  This special 2 hour session provides individuals an opportunity to learn more about the proposed regulations and direct specific questions to the U.S. Department of Justice.  This session will be recorded and a written transcript will become part of the public record for consideration as the U.S. Department of Justice moves forward with the rulemaking process.

SPEAKERS:  Representatives from the U.S. Department of Justice, Civil Rights Division

FORMATS:   Telephone, Streaming Audio via the Internet and Real-Time Captioning via the Internet

COST:  $25.00 per connection for Telephone; $15.00 per connection for Streaming Audio via the Internet; $15.00 per connection for Real-time Captioning via the Internet

REGISTRATION:   On-line at www.ada-audio.org (Follow links to ADA Audio Conference Series)

QUESTIONS:   Contact your regional ADA Center at 800-949-4232 (V/TTY) or the DBTAC-Great Lakes ADA Center (Program Host) at 312-413-9319 (V/TTY) or by email at gldbtac@uic.edu

This session will be recorded and a written transcript will be created and both will be posted within 10 business days of the completion of the program to the archives on www.ada-audio.org

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High Medicare Costs, Courtesy of Congress

On Wal-Mart’s Web site, you can buy a walker for $59.92. It is called the Carex Explorer, and it’s a typical walker: a few feet high, with four metal poles extending to the ground. The Explorer is one of the walkers covered by Medicare.

But Medicare and its beneficiaries aren’t paying $59.92 for the Explorer or any similar walker. In fact, they’re not paying anything close to it. They are paying about $110.

For years, Congress has set the price for walkers and various medical equipment, and it has consistently set them well above the market rate, effectively handing out a few hundred million dollars of corporate welfare every year to the equipment makers.

But as of July 1, this system is set to change. Companies will instead have to submit bids — to compete with one another, just as Wal-Mart competes with Target — if they want to continue selling products to Medicare. Based on a pilot program, the price of walkers, delivery and setup included, will fall to about $80.

Now, would you like to guess how the equipment makers feel about this?

Read more and guess here in the New York Times.

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World-class marksman - The Denver Post

Paralyzing accident doesn't diminish sharpshooter's integrity — or his impeccable aim Don't let the wheels fool you. Life's been good to Dan Jordan.

"After I got hurt, I knew there was still a future in shooting," said one of the world's top riflemen, in a wheelchair or otherwise.

This summer, the 29-year-old, who grew up in Douglas County, will visit the White House for the fourth time.

In three years as head rifle coach of his alma mater, Jordan has led the University of Alaska Fairbanks to three straight NCAA national rifle championships

Read more World-class marksman - The Denver Post

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Bills to Follow - HR 3194

NOTE: This entry will update as the bills status changes.

House Judiciary Committee Unanimously Passes Sensenbrenner/Hoyer Bill

June 18, 2008
FOR IMMEDIATE RELEASE
Contact: Raj Bharwani
(202) 225-5101

(WASHINGTON, DC) – Earlier today, by a vote of 27 to 0, the House Judiciary Committee unanimously passed HR 3195, the ADA Restoration Act, introduced by former Judiciary Committee Chairman Jim Sensenbrenner (R-Wis), and Majority Leader Steny Hoyer (D-MD).  Additionally, the House Education and Labor Committee also marked-up the bill, where it passed overwhelmingly by a vote of 43 to 1.  The following statement was made by Congressman Sensenbrenner at the Judiciary Committee mark-up:

“One of our finest moments occurred eighteen years ago when President George H.W. Bush signed the Americans with Disabilities Act into law.  It was with that stroke of a pen that this country took a significant step forward in eliminating the barriers that for far too long kept disabled Americans from fully participating in the American dream.  Prior to the Americans with Disabilities Act of 1990, disabled Americans faced not only physical barriers in almost all aspects of society but also attitudinal barriers, which relegated them to a form of second class citizenship. Moreover, because federal and state laws were ill-equipped to protect disabled Americans at the time, the false stereotypes and discriminatory treatment employed by others created a vicious cycle.

“Last summer, I joined with my friend, Majority Leader Steny Hoyer, to introduce the ADA Restoration Act (ADARA).  The bipartisan legislation that we introduced quickly garnered nearly 250 cosponsors.  We introduced the ADARA to enable disabled Americans utilizing the ADA to focus on the discrimination that they have experienced rather than having to first prove that they fall within the scope of the ADA’s protection.  With this bill, the ADA’s “clear and comprehensive national mandate for the elimination of discrimination on the basis of disability” would be properly restored and the ADA can rightfully reclaim its place among our Nation’s civil rights laws.“The ADARA was originally drafted as a response to a number of Supreme Court cases that chipped away at the broad protections of the ADA.  The impact of these Supreme Court decisions has been to exclude millions of disabled workers from the ADA’s protections and requirements for employers.  Let me say that again—millions of Americans who want to work and who were otherwise intended by Congress to be able to work free from discrimination, have had the door shut in their faces because of these decisions.“The courts have created a situation in which disabled Americans can now be discriminated against by their employers because of their impairments, but these citizens are not considered disabled enough by our federal courts to invoke the protections of the ADA.“This is unacceptable.  No other civil rights law, including Title VII of the Civil Rights Act of 1964, requires a victim of discrimination to first prove that she or he is worthy of the law’s protections before proving a discrimination case.  Nor should the ADA require such proof.  The ADA is a civil rights law and should be interpreted as such.“The Substitute Amendment that I am joining Chairman Conyers in offering reflects a hard sought compromise between members of the disability community and members from the business community.  By its very nature, no one is completely satisfied with a compromise.  Both sides made concessions to the other during their arduous negotiations.“As in the original ADA that passed Congress in 1990, the substitute keeps the requirement that an impairment must “substantially limit a major life activity” in order to be considered a disability.  As written, the ADARA would have broadened the definition of disability.  The compromise defines “substantially limits” as “materially restricts” and contains explicit language rejecting the Supreme Court’s more restrictive interpretation.“The substitute also contains a non-exhaustive list of examples of major life activities.  It further notes that major life activities also include major bodily functions and contains a non-exhaustive list of examples of major bodily functions.“The substitute amendment contains language making it clear that the “regarded as” prong of the definition covers situations in which an employee is discriminated against because of his or her actual or perceived impairment, whether or not the impairment is perceived to substantially limit a major life activity.  “Regarded as” would not apply to transitory and minor impairments where an impairment is considered “transitory” if it has an expected duration of six months or less.  Accommodations need not be made to someone who is disabled solely because he or she is “regarded as” disabled.“The ADA has been one of the most effective civil rights laws passed by Congress.  Its continued effectiveness is paramount to ensuring that the transformation that our nation has undergone continues in the future and that the guarantees and promises on which this country was established continue to be recognized on behalf of all its citizens.“The substitute amendment before us today is the result of hard work and countless hours of good-faith negotiations between staff, disability advocates, and business groups.  I look forward to passage by this Committee today, and expect broad bipartisan support when this bill reaches the House floor.”

Businesses Face Push to Expand Disabled Access

Advocates Worry Bid to Clarify Rules May Spur Backlash

The U.S. is moving on two fronts this week to expand businesses' obligations to accommodate disabled people, in a legislative and regulatory push that risks a backlash from millions of businesses worried about costs.

On Wednesday, two House committees will finish crafting a bill that broadens the population entitled to employment rights under the Americans with Disabilities Act, reversing Supreme Court decisions narrowing it. The bill could come to a vote before the July 4 recess, if lawmakers reach agreement. Also this week, the Bush administration will begin seeking public comment on 1,000 pages of proposed rules -- covering issues from hotel-room doors to theater seating -- clarifying existing regulations on physical access for disabled people.

Read more in the Wall Street Journal here.

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MS sufferer's landmark win in right to die case

Debbie Purdy, who is confined to a wheelchair, wants to able to die in a clinic in Switzerland when her condition becomes unbearable.

But she fears that if her husband, Omar Puente, helps her on her final journey he may be prosecuted in Britain for assisting her suicide.

More here.

For more on euthanasia see Not Dead Yet.

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ADA Compromise on Tap

Disability advocates and business leaders are close to reaching a proposed deal to recommend language to Congress that would resolve their conflicts over the ADA Restoration Act.

The proposed language, which could still change, would redefine "disability" to be any actual, past or perceived physical or mental impairment that "substantially limits a major life activity" and then defines this phrase to mean "materially restricts a major life activity," according to details released by the American Association of People with Disabilities.

The proposal also includes a non-exhaustive list of covered major life activities, and defines the operation of major bodily functions as a covered major life activity.

Find out if your major life activities or  major bodily functions are covered  here.

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NOTE: The article mistakenly refers to Andrew Imparato, AAPD's President and CEO as Michael Imparato.

Music Man Karl Carlson master of the accordion, always played it cool

Karl and his wife at an Access Alaska picnic
Karl and his wife Betty at an Access Alaska picnic.

The Frigidaires just won’t be as cool after this.

Karl Carlson, the lead accordion player for the swinging Fairbanks combo, has died. He would have been 86 on June 25.

Karl, who was born Carl, once said the band got its name in the days when every musician longed to be a cool cat.

So they thought, “If we want to be cool, why not be real cold, like frigid?”

The Frigidaires played it cool in the 1950s, featuring the likes of Colin MacDonald and Eddie Krize, with Karl on accordion.

Read more about Karl in Dermot Coles column here.

More on Harriet McBryde Johnson

A Life of Quality

Ms. Johnson, a lawyer who was 50, died on June 4. She was an eloquent defender of the rights of the disabled. She came to wide attention through The New York Times Magazine, in essays she wrote about her confrontations with the philosopher Peter Singer over his defense of killing disabled infants at birth.

Ms. Johnson, an atheist, was unmoved by religious appeals to life’s sanctity. Instead, her rebuttal boiled down to a simple: How dare you? How dare you decide that certain people with limitations are nonpersons with no right to exist? How dare you presume to define “quality of life,” for me or anyone else, to set the value of a disabled life lower than yours, or to conclude that such a life lacks the potential for happiness and dignity because you cannot imagine how it could?

The disabled certainly suffer. But everyone does, Ms. Johnson argued, and if the disabled face extra hassles and indignities in life, well, remedies for those things are all possible, and should be provided. Instead, the world is run by and for the nondisabled, and those who don’t measure up are infantilized, ignored and stockpiled in institutions that Ms. Johnson called “the disability gulag.” She feared being sent to it in her later years.

Ms. Johnson was enraged by injustice, but not susceptible to hatred or despair. To her, Mr. Singer was a monster, but she realized that the unenlightened also included many of her own friends, colleagues and relatives. She decided that “it’s not in my heart to deny every single one of them, categorically, my affection and my love.”

Read the New York Times article here.

Anchorage - FTA Grant Funds Additional Trips on AnchorRIDES

Thanks to a grant from the Federal Transit Administration, ADA, Senior and Medicaid riders have more travel options. The grant allows for additional service on weekday evenings and weekends - for any trip purpose. Currently, seniors and those living in the premium zone do not have service during these times. There is a $4.50 fare for each trip. Service will end on November 30, 2008 or when funds are depleted. For information, Call AnchorRIDES at 343-2550.

A Life Well Lived: Attorney, activist Harriet McBryde Johnson dead at age 50

“Death is natural and necessary, but not just. It is a random force of nature; survival is equally accidental. Each loss is an occasion to remember that survival is a gift.”

Harriet McBryde Johnson

Disability and human rights activist Harriet McBryde Johnson died at her home in South Carolina on June 3. The world has lost a passionate and dedicated advocate for social change. Untold numbers in the disability community and beyond have lost a caring friend and role model. Johnson was a civil rights lawyer, a weaver of tales, and a spokesperson for the dignity and humanity of people with disabilities. Her articles and essays for the New York Times, including a Sunday magazine cover piece, thrust Harriet onto the national stage. She wrote passionately and with humor about a quite serious topic: her right and the rights of others, to exist in the world as a person with a disability. Her withering critique of those who would deny her existence was delivered with a calm and open-hearted voice, and her generosity of spirit was evident always.

Article here.

Johnson, who was born with a neuromuscular disease, drew national attention for her opposition to "the charity mentality" and "pity-based tactics" of the annual Jerry Lewis muscular dystrophy telethon. Lewis told the Chicago Tribune he had no intention of making peace with opponents such as Johnson. He likened the idea of meeting with them to entertaining Hezbollah or insurgents in Iraq.

The protests started after Lewis wrote a 1990 Parade magazine article in which he imagined being disabled. Among his conclusions, "I realize that my life IS half, so I must learn to do things halfway. I just have to learn to try to be good at being half a person."

Article here. Picture here.

Articles by Harriet McBryde Johnson

Unspeakable Conversations

He insists he doesn't want to kill me. He simply thinks it would have been better, all things considered, to have given my parents the option of killing the baby I once was, and to let other parents kill similar babies as they come along and thereby avoid the suffering that comes with lives like mine and satisfy the reasonable preferences of parents for a different kind of child. It has nothing to do with me. I should not feel threatened.

Whenever I try to wrap my head around his tight string of syllogisms, my brain gets so fried it's . . . almost fun. Mercy! It's like ''Alice in Wonderland.''

It is a chilly Monday in late March, just less than a year ago. I am at Princeton University. My host is Prof. Peter Singer, often called -- and not just by his book publicist -- the most influential philosopher of our time. He is the man who wants me dead. No, that's not at all fair. He wants to legalize the killing of certain babies who might come to be like me if allowed to live. He also says he believes that it should be lawful under some circumstances to kill, at any age, individuals with cognitive impairments so severe that he doesn't consider them ''persons.'' What does it take to be a person? Awareness of your own existence in time. The capacity to harbor preferences as to the future, including the preference for continuing to live.

At this stage of my life, he says, I am a person. However, as an infant, I wasn't. I, like all humans, was born without self-awareness. And eventually, assuming my brain finally gets so fried that I fall into that wonderland where self and other and present and past and future blur into one boundless, formless all or nothing, then I'll lose my personhood and therefore my right to life. Then, he says, my family and doctors might put me out of my misery, or out of my bliss or oblivion, and no one count it murder.

Not Dead at All - Why Congress was right to stick up for Terri Sciavo

13 Questions from Ouch! May 15, 2008
There are worse things in the world than looking foolish. Someone told me that right before law school and it has stood me in very good stead. If you can risk looking foolish, you can do what you want to do.
Step-by-Step Guide to Organizing a Protest Against the Jerry Lewis Telethon The Disability Gulag
Grandmother lost her mother in the early 1900's to what was considered progressive policy. To protect society from the insane, feebleminded and physically defective, states invested enormous public capital in institutions, often scattered in remote areas. Into this state-created disability gulag people disappeared, one by one.

Today, more than 1.7 million mothers and fathers, daughters and sons, are lost in America's disability gulag. Today's gulag characterizes isolation and control as care and protection, and the disappearances are often called voluntary placements. However, you don't vanish because that's what you want or need. You vanish because that's what the state offers. You make your choice from an array of one.

But now the gulag faces a challenge from people who know the fear firsthand.

The Way We Live Now: 5-30-04; Stairway to Justice Wheelchair Unbound
Alas for Tiny Tim, He Became a Christmas Cliche

Overlooked in the Shadows

New Mobility Magazine Person of the Year 2003: A Life Well Lived

Books by Harriet McBryde Johnson

Too Late to Die Young: Nearly True Tales from a Life

Review here.

And here.

Accidents of Nature

Others here.

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Awareness Training on Domestic Violence and Abuse for People with a Disability

ACCESS ALASKA Proudly Presents:

ALASKANS SPEAK UP!

Awareness Training on Domestic Violence and Abuse for People with a Disability

  • Recognizing Domestic Violence and Abuse
  • Personal Safety and Reporting
  • Screening Providers


Thursday, June 12 and Friday, June 13
Time: 1:00 - 5:00 pm
At Access Alaska 526 Gaffney, Suite 100
Fairbanks, AK 99701

This Free, two day training is designed for consumers…family members and care providers will also benefit and are encouraged to attend.

To Register Contact Lorraine Trask or Cassi Berry (907) 479-7940

If you require a reasonable accommodation, please let us know no later than June 10, 2008 so we may be able to fulfill your request.

This training is sponsored by grant funding awarded to the State of Alaska, Governors Council on Disabilities and Special Education from the Department of Justice, Office of Violence Against Women (Grant #2004-FWAX-K033).

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Agencies Serving Clients Using Van Tran

From: David N. Leone, FNSB Transportation Manager

Subject: Change in Van Tran Fare

In August 2007, the Federal Transit Administration (FTA) reviewed the Fairbanks North Star Borough’s Van Tran service and found that Van Tran service was experiencing a pattern and practice of Van Tran ride denials. This was, in part, due to the growth in Van Tran rides requested and the lack of Van Tran resources to meet the demand.

The Fairbanks North Star Borough submitted a compliance plan to FTA that addresses the denied rides by developing a new application and eligibility assessment process, which the borough is reviewing with agencies serving individuals with disabilities and through a series of public hearings. This review will be on going over the next several years.

In analyzing the denied rides, the borough also reviewed the Van Tran fare structure. Currently, Van Tran offers a single, one-way ride for $2.00 and a monthly pass good for unlimited rides for $36.00. The outcome of this review determined that with the higher cost in fuel and with improvements to the fixed route bus system, Van Tran should eliminate the monthly pass and have each ride be $2.00. The fixed route bus system should continue to provide reduced monthly passes to individuals with disabilities and seniors for $18.00. This was presented to the Fairbanks North Star Borough Assembly in the FY2009 budget and was approved on May 8, 2008.

Therefore, effective July 1, 2008 Van Tran will no longer provide the $36.00 monthly pass. All Van Tran rides will cost $2.00 and can be pre-purchased through one-way ride coupons. The fixed route bus system will continue providing monthly passes for individuals with disabilities and seniors for $18.00.

We apologize for any inconvenience this may cause your clients. If you have any questions, please contact me at 460-2924 or at dleone@co.fairbanks.ak.us.

Anchorage on the Move Survey

AMATS is updating Anchorage on the Move, a plan describing how to seek public involvement when planning and prioritizing federally-funded investments in area roads, public transit, bicycle and pedestrian facilities. The AMATS Public Participation Plan will describe how best to engage stakeholders in dialog about decisions regarding transportation priorities and funding within the Municipality.

The public participation plan must be broad and connect with transportation providers and users, low-income families; people who speak languages other than English, and people who walk, bike, and use public transit (including those who experience with disabilities - DT). If you are interested in providing input on this update, click on the following link to provide contact information so we may include your ideas in the plan’s development:

Take the survey here.

For more information please contact Anne Brooks at 272-1877 or Christine Bernardini at 343-7993.
www.muni.org/transplan/amats.cfm

Try to send your responses in ASAP because the advisory committee is meeting next on June 3rd.

Brain Tumors: Who's Had Them, What The Symptoms Are, And What The X-Rays Look Like (VIDEO)

Intersting article from a usually political source.

Amid reports that Senator Ted Kennedy has a malignant brain tumor (specifically called "malignant glioma"), here are the answers to some questions you might be asking.

Answers to those burning questions here.
From The Huffington Post.

Watch the video, after 13 years she finally found a 'respectful doctor' who believed and helped her.

How many times have I heard that during support group meetings? 'I finally found a doctor who believed me!'. Doctors, wake up and listen!

Campaign 08

I've added a new category. Campaign 08. Look there for voting and candidate information.

And remember to VOTE. Health care and disability rights issues depend on your vote.

Grade-schooler gains life lessons in D.C. trip

By Colleen Surridge
Parsons Sun

While her classmates sat in their classroom in Parsons learning the three Rs, 9-year-old Allie Jones was in Washington, D.C., last week learning lessons in history, politics and life.

It is in Washington where Allie saw direct action in progress -- the same type of direct action that has led to change over the years from the civil rights movement.

Martin Luther King Jr. once wrote in a letter from Birmingham jail, "Why sit-ins, marches and so forth? Isn't negotiation a better path? You are quite right in calling for negotiation. Indeed, this is the very purpose of direct action. Nonviolent direct action seeks to create such a crisis and foster such a tension that a community which has constantly refused to negotiate is forced to confront the issue. It seeks so to dramatize the issue that it can no longer be ignored."

Allie was in Washington for the 25th anniversary of ADAPT (American Disabled for Attendant Programs Today), a group that uses direct action to fight for legislation to promote services in communities instead of warehousing people with disabilities in institutions and nursing homes.

"It's about having access to everything, so they have their rights like everyone else does," Allie said.

Way to go Allie! Read more here in the Parsons Sun.

Healing Racism in Anchorage

Racism and/or disablism both are stains and strains on our community.

April 16, 2008

Dear Fellow Citizen of Anchorage:

Once again, an incident of racial prejudice has shocked our town. Local disk-jockeys have made a “joke” at the expense of Native Alaskan women, and have been suspended pending “sensitivity training.” Does this treatment solve the problem? Not unless you think the problem is merely the public airing of sentiments and beliefs that most of us carry in our hearts.

Healing Racism in Anchorage, a grass-roots organization of volunteers, thinks there is a better, deeper way to cure the underlying sickness of prejudice, racism, and bigotry that infects our community.

A five-week session of classes begins with the video “Anchorage Is Our Home,” showing us the impact of stereotyping, prejudice, and racism in our own town. Discussion centers on the experiences and feelings of members of the class evoked by watching the video. All discussion is confidential - we agree not to report it outside of the classroom without prior consent of the speaker.

In successive meetings we watch other videos, including the powerful “The Color of Fear.” Members always have ample time to discuss, and to express their thoughts and feelings. Experienced leaders maintain confidentiality, safety, and respect at all times. Readings will also be provided for home study.

Whether you have already been a participant, or have not yet attended one of these classes, we invite you to join a new group that will meet for five successive Thursday evenings, starting May 15th:

6:30 – 8:30 P.M.
May 15 – June 12
BP Energy Center
(a separate building in back of the big BP headquarters at the corner of Northern Lights Blvd. and New Seward Hwy.)

Cost: Free to Members
$20 for a One-Year Membership
(reduced price to students and seniors)

Sincerely,

Healing Racism in Anchorage
PO Box 92086
Anchorage, AK 99509-2086
907/561-3238; 907/677-8918 fax
www.anchoragehealingracism.org; contact ppartnow@alaska.com

More news reports:
KTUU
AP
the source.

April 4, 1968

"Well, I don't know what will happen now. We've got some difficult days ahead. But it doesn't matter with me now. Because I've been to the mountaintop. And I don't mind. Like anybody, I would like to live a long life. Longevity has its place. But I'm not concerned about that now. I just want to do God's will. And He's allowed me to go up to the mountain. And I've looked over. And I've seen the promised land. I may not get there with you. But I want you to know tonight, that we, as a people, will get to the promised land. And I'm happy, tonight. I'm not worried about anything. I'm not fearing any man. My eyes have seen the glory of the coming of the Lord!"

-- Martin Luther King, Jr., Memphis, Tennessee, April 3, 1968

Congatulations Frank!

Access Alaska is proud to announce that our own Frank Box has won the the Outstanding Direct Service Professional Award in the category of Traumatic Brain Injury. The award which is sponsored by the Alaska Alliance for Direct Service Careers and will be awarded at the Full Lives Conference on April 17th.

Frank received many nominations from co-workers and members of the Head injury Support group, which is a testament to how much we appreciate all he has given the field. We are all very proud of Frank for his compassion and hard work.

Read some of Franks work here.

Student social movement to ban the "R" word

By Andrea Gusty, CBS 11 News Reporter

It's a social movement that may surprise you: Anchorage students are banding together to encourage people to quit using the word "retarded" in a negative light, by banning the "R" word all together.

Fifty years ago, the word retarded was the clinically accepted term for people with developmental disabilities. Over the years, it has become hurtful and derogatory. Now, some local students want it banned.

More from Channel 11 here.
The “R” Word Campaign here.

r_small2.jpg

Airlines tackle wheelchair need

Ellen Brehm, a retired nurse who walks with cane, was stranded last September after flying home from California following the annual trip she's been taking with college friends since 1947.

Her flight, had which departed six hours late, landed at Newark at about 1:20 a.m. The wheelchair service she'd requested was nowhere in sight. Brehm returned to the plane to sit and wait, but a flight attendant told her she must get off so the crew could leave.

She then stood on the jet bridge, balancing on her cane, to wait. About 30 minutes later, another flight attendant exited the plane and asked if she needed help. The woman eventually returned with a wheelchair attendant.

"Here I am, at 2 a.m., 83 years old, all by myself," Brehm says. "There wasn't one person in this whole huge airport. I don't know what I would have done if she hadn't come out."

Airlines are obligated to provide free, prompt wheelchair assistance between curbside and cabin seat to comply with the 21-year-old Air Carrier Access Act, an anti-discrimination law.

Fly here for more.

New NY Governor Legally Blind

When he was elected Senate minority leader, Mr. Paterson recalled the discrimination he had suffered because he is disabled. “So I have had this desire my whole life to prove people wrong, to show them I could do things they didn’t think I could do,” he said. “This is just another.”

More here.

Cancer survivor triumphs for second year in row

Mackey wins Iditarod again

NOME, Alaska (AP) -- Lance Mackey couldn't shake four-time champion Jeff King and his faster team.

So Mackey pulled off a stunt at the Elim checkpoint -- 123 miles from the Nome finish line -- that proved to be the turning point en route to winning his second consecutive Iditarod Trail Sled Dog Race on Wednesday.

Mush here for more.

Official Iditarod site.
More here.

Cancer survivor triumphs for second year in row

Mackey wins Iditarod again

NOME, Alaska (AP) -- Lance Mackey couldn't shake four-time champion Jeff King and his faster team.

So Mackey pulled off a stunt at the Elim checkpoint -- 123 miles from the Nome finish line -- that proved to be the turning point en route to winning his second consecutive Iditarod Trail Sled Dog Race on Wednesday.

Mush here for more.

Official Iditarod site.
More here.

Judge Judy and Disability

I don't watch Judge Judy, in fact I don't even watch television but on her February 14 episode the following exchange occurred:

Judge Judy said "What is your disability?"

Girl "I have MS, multiple sclerosis"

the judge replies "YOU LOOK FINE TO ME"!

Hope she isn't the Judge on this guys case.

Judge Judy here. Have a hidden disability or just offended? Send her "Honor" a message here.

Wheelchair Dumping

Wheelchair dumping is a relatively new term and age-old phenomenon. Few people ever heard of wheelchair dumping until this week. Thanks to a surveillance videotape and websites such as You Tube many of us know about Brian Sterner, a quadriplegic, who was literally dumped out of his wheelchair by a Tampa Florida police officer on January 29. The videotape is damning

Read more here.

Health Insurer To Be Charged With Teen's Murder

The family of a California teenager who died awaiting a liver transplant say they will sue the insurer who they blame for their daughter's death.

Nataline Sarkisyan, a 17-year-old from Glendale, Calif., died Thursday just a few hours after her insurer, CIGNA HealthCare, approved a procedure it had previously described as "too experimental."

Read more here.

More here at CNN.

Follow all the news here.

Visit CIGNA (A Business of Caring) here. Let them know what you think

Independent Living, Indian Lands

Independent Living

Indian          Lands – Notice that gap?

It is so incomprehensible to me that people with disabilities in the most dominant society that have secured the benefits of an Independent Living Center usually will not extend their service parameters to include American Indian people with disabilities when they reside on Indian Lands.

People with disabilities in the most dominant society understand, or I thought they did understand CIVIL RIGHTS ISSUES. We have one minority population discriminating against another minority population – perhaps “discriminating” is not the correct word – “disregarding” may be even more appropriate – disability disregard.

I found on the ADAPT page something very interesting about people with disabilities in the most dominant society – it was in DENVER – If you read the HISTORY of the Independent Living Movement, you will see in 1986 ADAPT invited ROSA PARKS to lead a Detroit march.

They MUST HAVE REALIZED the same connection that I see here today - Civil Rights.

Civil Rights for people with disabilities in the most dominant society – If you’re on Indian Lands the same courtesies are not extended. There is a gap and I’m working on that gap.

Will the Independent Living Centers Administration kindly extend their services to American Indian people with disabilities when they reside on Indian lands?

If you cannot do that – tell me why.
If you have found a way to do that – tell me how.

Connie Lee Berg e-mail your response: redlake679@hotmail.com

Online Course - Basic ADA Building Blocks

The Basic ADA Building Blocks webcourse is an eight-week introductory webcourse on the Americans with Disabilities Act of 1990 (ADA) that explores the legal requirements and the spirit of the ADA. The course emphasizes the thought process required to answer questions about the ADA. There are interactive application exercises throughout the course.

More here.

New Website for National Center on Elder Abuse Includes Resources for Caregivers

The U.S. Administration on Aging (AoA) introduced a new website for its National Center on Elder Abuse. The redesigned website provides local resources for caregivers, information about how to find help if you are worried about a senior in your community, and definitions, signs and risks of elder mistreatment. The website includes a database of promising practices related to elder abuse prevention, intervention, and public education and other statistics and research. The Center "is committed to helping national, state, and local partners in the field be fully prepared to ensure that older Americans will live with dignity, integrity, independence, and without abuse, neglect, and exploitation." For more information, visit:

National Center on Elder Abuse

If you suspect elder abuse, neglect, or exploitation, call 1-800-677-1116.

If someone is in immediate danger, call 911 or the local police for immediate help.

2007 Stakeholder Satisfaction Survey for the Governor's Council on Disabilities and Special Education

The Alaska Governor's Council on Disabilities and Special Education would like your ideas about how well the Council is doing its job. Results of the survey will be used to shape Council activities in the future. Your feedback is important so that the Council can carry out its mission.

YOUR OPINION COUNTS!

The federal Administration on Developmental Disabilities (ADD) requires that all councils in the United States use the same questions. In order for this survey to have national validity, the questions must be generic to all councils and specific in terms of what is asked.

To take the survey, please click here: http://www.surveymonkey.com/s.aspx?sm=k5Krb8Fo5nW7ht99nY1WxA_3d_3d

We would appreciate a response by December 14th at 5:00 pm.

If you are unable to complete the on-line survey and would prefer a hard copy, need assistance completing it, or have questions about the survey or any of the Council's activities, please call the Council toll-free (in Alaska) at 1-888-269-8990, 269-8926 (in Anchorage), or e-mail Carrie Predeger at carrie.predeger@alaska.gov.

NPR - 'Including Samuel': Parental View of Mainstreaming

Dan Habib's documentary Including Samuel, shows the benefits and challenges of combining disabled children with mainstream children in activities and classrooms.

Michele Norris talks with Habib, whose son has cerebral palsy.

Listen here. Visit the website here.

Age 60 and older get free rides - Anchorage

Senior citizens 60 and older can ride the People Mover bus free every Wednesday by showing People Mover operators proof of age. "Although we started this as a demonstration for the summer, we received many requests to continue the program to help increase the mobility of our senior citizens," said Jody Karcz, director of public transportation. Since Seniors Ride Free started this summer, Wednesday ridership has increased by 550 trips on average.

People Mover sells reduced-fare monthly passes for seniors and people with disabilities for $15. These passes offer unlimited rides for a calendar month. For more information, call 343-6332 or 343-6543.

US Chamber Fights ADA Restoration

From www.uschambermagazine.com:

In a move that could have far-reaching implications for businesses, Congress is considering the most sweeping changes to the Americans with Disabilities Act (ADA) since the employment law went into effect in 1990.

A recently introduced bill would radically expand the number of persons and conditions covered by ADA by changing the definition of “disabled” to include temporary or correctable conditions such as poor eyesight. The bill—the ADA Restoration Act of 2007—would also do away with the current ADA requirement that an impairment must “substantially limit one or more major life activities” to be considered a disability. Virtually the entire U.S. working population could be covered by the law under the proposed changes.

“The Chamber will actively oppose these radical changes because they would not address the needs of those who are deserving of ADA’s protections but, instead, divert significant compliance and enforcement resources to ‘gotcha’ lawsuits that already overwhelm enforcement agencies and the courts,” says U.S. Chamber Executive Vice President of Government Affairs Bruce Josten.

In 2006, the Equal Employment Opportunity Commission found that of the 15,575 charges filed under ADA, there was reasonable cause to believe discrimination occurred in only 5.6% of the cases.

Any changes to the definition would also affect other portions of ADA law, including Title III public access provisions. Title III calls on virtually every business serving the public—regardless of size or number of employees—to make their facilities accessible to people with disabilities.

In addition, the Department of Justice is already planning to implement revised accessibility guidelines. “Expanding the class of people who can assert a claim for accessibility will subject businesses and other facility operators to greater confusion and litigation,” Josten says.

Go to the Chamber website to comment on this article.

To contact the U.S. Chamber of Commerce

U.S. Chamber of Commerce
1615 H Street, NW
Washington, DC 20062-2000
Main Number: 202-659-6000

To contact the Alaska Chapter visit their website.

Yoga in Chairs - Fairbanks

Living with Multiple Sclerosis - Sit Down - Feel Better

Physical activity is extremely important for individuals with MS, and yoga is now recognized as an excellent means of MS management, whether the individual manifests little or no outward signs of the disease, or whether they spend most of their time in a wheelchair. Shelly Carlson, the Multiple Sclerosis Foundation and Access Alaska along with the Fairbanks MS Support Group is sponsoring Yoga classes for people with MS. These classes are free for those with MS. No experience is necessary and the classes are designed to include those of ALL abilities.

Every Wednesday 5:30 - 6:30 at Access Alaska - Fairbanks 526 Gaffney Road Suite 100, Fairbanks, AK

Call Access Alaska 479-7940 or Shelly Carlson 457-8195 for more information.
Visit www.yogainchairs.com for more information.

Martin's World

Advocating for Martin's rights, and beyond Martin for the rights of all the disabled, has become not merely Donna's passion but the organizing principle of her life. This mother of four -- Martin has three younger brothers -- somehow managed to go to law school, graduating last January. In the process, she did an externship in school disability law.

"My basic philosophy is not to take no for an answer," she said of her ongoing struggle to secure scraps of funding on Martin's behalf. "Taking no allows the system to go on. If I get a yes, they've broken the rule, and we've made a breakthrough. The system starts to change."

She adds, "This is a civil rights movement."

And her home state just happens to be one of the worst in the country in terms of providing funding for at-home care, which is why members of the outspoken disability-rights organization ADAPT converged on Chicago this week for five days of "protest against Illinois systems that starve people with disabilities . . . of their rights and their independence." Donna was with them, of course.

Read more about Martin here.

ADAPT gets busy in Chicago

Follow the news on ADAPT actions here.

ADAPT's Action Reports can be found here.

Adapt on YouTube.

55 Arrested as ADAPT Makes House Call on AMA

For Immediate Release
September 11, 2007
http://www.adapt.org

Chicago---ADAPT and the American Medical Association (AMA) both experienced "deja-vu" Monday as 55 members of ADAPT were arrested outside AMA headquarters when they demanded to meet with AMA Executive Vice President and CEO, Michael Maves. Fifteen years ago in 1992 in Chicago, ADAPT pressed the AMA to endorse home and community-based long-term care services and supports for older and disabled Americans instead of forcing them into nursing homes and other institutions.

"It's a sad commentary that we're back on the AMA's doorstep about the same issue," said Rahnee Patrick, Chicago ADAPT Organizer. "It's an even sadder commentary that after 15 years the AMA still has the same arrogant, paternalistic attitude about people with disabilities, and that they're so afraid of us they'd rather see us arrested than sit at the table and work together with us."

ADAPT had four demands for the AMA including:

* Endorse the Community Choice Act (S. 799, H.R. 1621) which is federal legislation that would give people eligible for nursing home and/or institutional placement a choice to choose community services instead;

* Work with ADAPT to develop an action plan that assures that people with disabilities and seniors get REAL CHOICE in long-term care services/supports so they are able to live in the legally required "most integrated setting," and provide the AMA membership with continuing medical education programs about community-based alternatives to institutionalization;

* Develop an AMA ethics policy requiring doctors to disclose to their patients any financial interest they have in a nursing facility when they are discussing long-term care with those patients, and to not refer any patient to a nursing home in which the doctor has a financial interest;

* Require that AMA Board of Trustees and leadership divest themselves of all financial interests in nursing facilities, etc.

"With the swipe of a pen, a doctor can take away your freedom by sending you to a nursing home when you're discharged from a hospital rather than exploring options in the community," said Diane Coleman, ADAPT Organizer from Chicago. "I can only wonder if a number of those referrals come because many doctors have ownership interest in nursing homes."

ADAPT wrote Dr. Maves in July, 2007, asking the AMA to join 500 other national, state and local organizations in endorsing the Community Choice Act, asking for a response by September 7. Monday's protest followed the lack of an appropriate response by Maves to the ADAPT letter, and the ten-year long lack of AMA endorsement for legislation similar to the current Community Choice Act.

"If the AMA thinks that today is the end of our fight, they are sadly mistaken," added Patrick. Doctors make a very good living on the backs of people with disabilities, and we will not let them continue to push us around and put us in institutions."

For Information contact:
Bruce Darling 585-370-6690B
Marsha Katz 406-544-9504
Gary Arnold 773-425-2536
FOR MORE INFORMATION on ADAPT visit our website at http://www.adapt.org/

Contact the AMA here.

Assisted suicide attacked from an unlikely front

Disability rights groups, typically supportive of individual liberty, have helped defeat bills out of fear that HMOs would see a chance to cut care.

Five times in the last dozen years, bills on medically assisted suicide have risen in the California Assembly, and five times they have failed.

In every instance, a great deal of the credit for their demise goes to a constituency associated with advancing personal choice and civil rights — namely, the disability rights movement.

Read more here.

Honoring our Past

It's a little-known moment in a little-known civil rights movement. But for people with disabilities, it's a moment as important as Selma or Stonewall. Thirty years ago, a band of disabled people staged a sit-in at a federal office building in San Francisco.

NPR coverage from 2002 here.

"We are no longer asking for charity. We are demanding our rights!
Honoring a Disability Rights Pioneer: Ed Roberts' 504 Victory Speech

The 504 Homepage and Disability Rights Education and Defense Fund, Inc